Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study

Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study

Authors of this article:

Rose M Gilbert^{1, 2, 3} ;   Dayyanah Sumodhee⁴ ;   Nikolas Pontikos^{2, 5} ;   Catherine Hollyhead⁶ ;   Angus Patrick⁶ ;   Samuel Scarles⁷ ;   Sabrina Van Der Smissen⁷ ;   Rodrigo M Young⁵ ;   Nick Nettleton⁷ ;   Andrew R Webster^{1, 2, 5} ;   Jocelyn Cammack^{1, 5}