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Skip search results from other journals and go to results- 13 JMIR Research Protocols
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CDD is characterized by a broad range of clinical features, including early-onset refractory epilepsy; hypotonia; developmental, motor, and intellectual disabilities; cerebral (cortical) visual impairment; and microcephaly [3]. Epileptic seizures are usually the first symptom to occur, with a median age of onset of 6 weeks (by the age of 3 months in 90% of cases) [3,8,9].
JMIR Form Res 2025;9:e72489
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Epilepsy nurses provided one-on-one structured teaching to ensure all aspects of epilepsy care were covered. Each session lasted at least 30 minutes, and each patient randomly assigned to the epilepsy health education group received a total of 6 sessions. It is important to note that this program was intentionally designed to differ from well-established, more intensive programs like the MOSES (Modular Service Package Epilepsy) program [17].
J Med Internet Res 2025;27:e70665
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Mobile apps for patients with epilepsy have shown promising results; however, the value of patients’ collaborating with health care workers remains unclear [26]. Challenges persist, such as integrating electronic health records and standardizing data for registry use. In summary, studies exploring the implementation and impacts of digital health solutions in outpatient care are warranted.
J Med Internet Res 2025;27:e60343
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YouTube User Traffic to Paired Epilepsy Education Videos in English and Spanish: Comparative Study
Epilepsy, a common chronic condition, highlights the challenges faced by patients needing access to clinical specialists. Children and youth with epilepsy and their families need accurate and trustworthy information to manage their condition effectively [2].
Social media platforms, particularly You Tube, have become significant sources of information for many people.
JMIR Form Res 2025;9:e56720
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Thus, this study aimed to investigate potential determinants for dropout in remote PRO-based follow-up among patients with epilepsy. We examined the association between dropout in PRO-based follow-up and determinants from the following three domains: health-related self-management, general and mental health status, and patient satisfaction.
JMIR Form Res 2025;9:e58258
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This allows for more proactive and effective intervention for patients, making it an effective tool for the evaluation and diagnosis of epilepsy [5]. EEG is currently the gold standard for diagnosing neonatal epilepsy [6]. However, the interpretation of EEG primarily relies on the clinician’s previous experience, which can impact the interpretation of some critical signals. Therefore, monitoring epilepsy, especially in real time, remains a challenging task [7].
J Med Internet Res 2024;26:e55986
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Anxiety and depression in epilepsy are highly prevalent, and they are stronger independent predictors of poor quality of life than seizure frequency [1]. They are particularly relevant to people with posttraumatic epilepsy (PTE), including veterans.
JMIR Res Protoc 2024;13:e59329
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While user experience research has been conducted for pre-existing apps tailored toward the management of our 3 chosen relapsing conditions: multiple sclerosis (MS) [9], epilepsy [18], and depression [10,23], and has identified themes to consider in device selection and RMT design for individuals living with these conditions [19], none of these previous studies have focused specifically on data visualization.
J Med Internet Res 2024;26:e43954
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We designated “generalized epilepsy” as label A and “focal epilepsy” as label B. TP(A) represents true positives, FP(A) represents false positives, and FN(A) represents false negatives for label A, and similarly for label B.
JMIR Med Inform 2024;12:e57727
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The disability-adjusted life-years rates in the United Kingdom, estimated at 92,400 per 100,000 population [5], highlight the extensive health loss attributed to epilepsy. Sudden unexpected death in epilepsy remains a critical concern, with an incidence rate of approximately 1 in 1000 people with epilepsy annually, emphasizing the need for ongoing research and innovative management strategies [6,7].
JMIR Res Protoc 2024;13:e60129
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