TY  - JOUR
AU  - Vestergaard, Sofie Bech
AU  - Roost, Mette
AU  - Christiansen, David Høyrup
AU  - Schougaard, Liv Marit Valen
PY  - 2025
DA  - 2025/1/14
TI  - Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study
JO  - JMIR Form Res
SP  - e58258
VL  - 9
KW  - patient-reported outcome measures
KW  - dropouts
KW  - digital solutions
KW  - outpatient care
KW  - epilepsy
KW  - seizure disorder
KW  - neurological condition
KW  - cohort study
KW  - health care
KW  - Denmark
KW  - self-reported
KW  - self-management
KW  - mental health
KW  - patient satisfaction
KW  - logistic regression
KW  - social support
AB  - Background: The use of patient-reported outcome (PRO) measures is an emerging field in health care. In the Central Denmark Region, epilepsy outpatients can participate in remote PRO-based follow-up by completing a questionnaire at home instead of attending a traditional outpatient appointment. This approach aims to encourage patient engagement and is used in approximately half of all epilepsy outpatient consultations. However, dropout in this type of follow-up is a challenging issue. Objective: This study aimed to examine the association between potential self-reported determinants and dropout in remote PRO-based follow-up for patients with epilepsy. Methods: This prospective cohort study (n=2282) explored the association between dropout in remote PRO-based follow-up for patients with epilepsy and 9 potential determinants covering 3 domains: health-related self-management, general and mental health status, and patient satisfaction. The associations were examined using multiple logistic regression analyses with adjustment for sex, age, education, and cohabitation. Results: A total of 770 patients (33.7%) dropped out of remote PRO-based follow-up over 5 years. Statistically significant associations were identified between all potential determinants and dropouts in PRO-based follow-up. Patients with low social support had an odds ratio of 2.20 (95% CI 1.38-3.50) for dropout. Patients with poor health ratings had an odds ratio of 2.17 (95% CI 1.65-2.85) for dropout. Similar estimates were identified for the remaining determinants in question. Conclusions: Patients with reduced self-management, poor health status, and low patient satisfaction had higher odds of dropout in remote PRO-based follow-up. However, further research is needed to determine the reasons for dropout. 
SN  - 2561-326X
UR  - https://formative.jmir.org/2025/1/e58258
UR  - https://doi.org/10.2196/58258
DO  - 10.2196/58258
ID  - info:doi/10.2196/58258
ER  -