%0 Journal Article
%@ 2561-326X
%I JMIR Publications
%V 9
%N 
%P e58258
%T Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study
%A Vestergaard,Sofie Bech
%A Roost,Mette
%A Christiansen,David Høyrup
%A Schougaard,Liv Marit Valen
%K patient-reported outcome measures
%K dropouts
%K digital solutions
%K outpatient care
%K epilepsy
%K seizure disorder
%K neurological condition
%K cohort study
%K health care
%K Denmark
%K self-reported
%K self-management
%K mental health
%K patient satisfaction
%K logistic regression
%K social support
%D 2025
%7 14.1.2025
%9 
%J JMIR Form Res
%G English
%X Background: The use of patient-reported outcome (PRO) measures is an emerging field in health care. In the Central Denmark Region, epilepsy outpatients can participate in remote PRO-based follow-up by completing a questionnaire at home instead of attending a traditional outpatient appointment. This approach aims to encourage patient engagement and is used in approximately half of all epilepsy outpatient consultations. However, dropout in this type of follow-up is a challenging issue. Objective: This study aimed to examine the association between potential self-reported determinants and dropout in remote PRO-based follow-up for patients with epilepsy. Methods: This prospective cohort study (n=2282) explored the association between dropout in remote PRO-based follow-up for patients with epilepsy and 9 potential determinants covering 3 domains: health-related self-management, general and mental health status, and patient satisfaction. The associations were examined using multiple logistic regression analyses with adjustment for sex, age, education, and cohabitation. Results: A total of 770 patients (33.7%) dropped out of remote PRO-based follow-up over 5 years. Statistically significant associations were identified between all potential determinants and dropouts in PRO-based follow-up. Patients with low social support had an odds ratio of 2.20 (95% CI 1.38-3.50) for dropout. Patients with poor health ratings had an odds ratio of 2.17 (95% CI 1.65-2.85) for dropout. Similar estimates were identified for the remaining determinants in question. Conclusions: Patients with reduced self-management, poor health status, and low patient satisfaction had higher odds of dropout in remote PRO-based follow-up. However, further research is needed to determine the reasons for dropout. 
%R 10.2196/58258
%U https://formative.jmir.org/2025/1/e58258
%U https://doi.org/10.2196/58258