@Article{info:doi/10.2196/58258,
author="Vestergaard, Sofie Bech
and Roost, Mette
and Christiansen, David H{\o}yrup
and Schougaard, Liv Marit Valen",
title="Determinants of Dropping Out of Remote Patient-Reported Outcome--Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study",
journal="JMIR Form Res",
year="2025",
month="Jan",
day="14",
volume="9",
pages="e58258",
keywords="patient-reported outcome measures; dropouts; digital solutions; outpatient care; epilepsy; seizure disorder; neurological condition; cohort study; health care; Denmark; self-reported; self-management; mental health; patient satisfaction; logistic regression; social support",
abstract="Background: The use of patient-reported outcome (PRO) measures is an emerging field in health care. In the Central Denmark Region, epilepsy outpatients can participate in remote PRO-based follow-up by completing a questionnaire at home instead of attending a traditional outpatient appointment. This approach aims to encourage patient engagement and is used in approximately half of all epilepsy outpatient consultations. However, dropout in this type of follow-up is a challenging issue. Objective: This study aimed to examine the association between potential self-reported determinants and dropout in remote PRO-based follow-up for patients with epilepsy. Methods: This prospective cohort study (n=2282) explored the association between dropout in remote PRO-based follow-up for patients with epilepsy and 9 potential determinants covering 3 domains: health-related self-management, general and mental health status, and patient satisfaction. The associations were examined using multiple logistic regression analyses with adjustment for sex, age, education, and cohabitation. Results: A total of 770 patients (33.7{\%}) dropped out of remote PRO-based follow-up over 5 years. Statistically significant associations were identified between all potential determinants and dropouts in PRO-based follow-up. Patients with low social support had an odds ratio of 2.20 (95{\%} CI 1.38-3.50) for dropout. Patients with poor health ratings had an odds ratio of 2.17 (95{\%} CI 1.65-2.85) for dropout. Similar estimates were identified for the remaining determinants in question. Conclusions: Patients with reduced self-management, poor health status, and low patient satisfaction had higher odds of dropout in remote PRO-based follow-up. However, further research is needed to determine the reasons for dropout. ",
issn="2561-326X",
doi="10.2196/58258",
url="https://formative.jmir.org/2025/1/e58258",
url="https://doi.org/10.2196/58258"
}