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This paper is in the following e-collection/theme issue:

Research Letter (55) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (2006) Infodemiology and Infoveillance (1619) Peer-to-Peer Support and Online Communities (857) Formative Evaluation of Digital Health Interventions (3615) Social Media in Public Health informatics (73)

Published on in Vol 10 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/79761, first published .
Digital connection to the human body: icons of smartphones, laptop, email, Wi-Fi, heart rate, and globe surround a textured torso.

Social Media Listening in Congenital Ichthyosis: Quantitative and Qualitative Findings

Social Media Listening in Congenital Ichthyosis: Quantitative and Qualitative Findings

Authors of this article:

Maëlla Severino-Freire1 Author Orcid Image ;   Céline Granier Tournier1 Author Orcid Image ;   Joëlle Malaab2 Author Orcid Image ;   Kira Süßmuth3 Author Orcid Image ;   Antoni Gostynski4 Author Orcid Image ;   Ángela Hernández-Martín5 Author Orcid Image ;   Juliette Mazereeuw-Hautier1, 6 Author Orcid Image
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