Social Media Listening in Congenital Ichthyosis: Quantitative and Qualitative Findings

Maëlla Severino-Freire   ¹ , MD ;   Céline Granier Tournier   ¹ , PhD ;   Joëlle Malaab   ² , MPH ;   Kira Süßmuth   ³ , MD ;   Antoni Gostynski   ⁴ , MD, PhD ;   Ángela Hernández-Martín   ⁵ , MD, PhD ;   Juliette Mazereeuw-Hautier   ^{1, 6} , MD, PhD

¹ Dermatology Department, Reference Center for Rare Skin Diseases, Centre Hospitalier Universitaire de Toulouse, Toulouse, France

² Kap Code, Paris, France

³ Department of Dermatology and Allergology, Campus of Medical School Berlin, Helios Klinikum Berlin-Buch, Berlin, Germany

⁴ Dermatology Department, Medical Center, Maastricht University, Maastricht, The Netherlands

⁵ Dermatology Department, Hospital Infantil Universitario Niño Jesús, Madrid, Spain

⁶ Toulouse University, CNRS, Inserm, Institut Toulousain des Maladies Infectieuses et Inflammatoires, Toulouse, France