Health Information Exchange

Balancing Risks and Opportunities: Data-Empowered-Health Ecosystems

Lan Li, Emma Back, Suna Lee, Rebecca Shipley, Néo Mapitse, Stefan Elbe, Melanie Smallman, James Wilson, Ifat Yasin, Geraint Rees, Ben Gordon, Virginia Murray, Stephen L Roberts, Anna Cupani, Patty Kostkova

J Med Internet Res 2025 (Mar 25); 27:e57237

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Stakeholder Consensus on an Interdisciplinary Terminology to Enable the Development and Uptake of Medication Adherence Technologies Across Health Systems: Web-Based Real-Time Delphi Study

Alexandra Lelia Dima, Urska Nabergoj Makovec, Janette Ribaut, Frederik Haupenthal, Pilar Barnestein-Fonseca, Catherine Goetzinger, Sean Grant, Cristina Jácome, Dins Smits, Ivana Tadic, Job van Boven, Ioanna Tsiligianni, Maria Teresa Herdeiro, Fátima Roque, European Network to Advance Best Practices and Technology on Medication Adherence (ENABLE)

J Med Internet Res 2025 (Mar 25); 27:e59738

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Data Interoperability in COVID-19 Vaccine Trials: Methodological Approach in the VACCELERATE Project

Salma Malik, Zoi Pana Dorothea, Christos D Argyropoulos, Sophia Themistocleous, Alan J Macken, Olena Valdenmaiier, Frank Scheckenbach, Elena Bardach, Andrea Pfeiffer, Katherine Loens, Jordi Cano Ochando, Oliver A Cornely, Jacques Demotes-Mainard, Sergio Contrino, Gerd Felder

JMIR Med Inform 2025 (Mar 07); 13:e65590

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Recent Use of Novel Data Streams During Foodborne Illness Cluster Investigations by the United States Food and Drug Administration: Qualitative Review

Michael C Bazaco, Christina K Carstens, Tiffany Greenlee, Tyann Blessington, Evelyn Pereira, Sharon Seelman, Stranjae Ivory, Temesgen Jemaneh, Margaret Kirchner, Alvin Crosby, Stelios Viazis, Sheila van Twuyver, Michael Gwathmey, Tanya Malais, Oliver Ou, Stephanie Kenez, Nichole Nolan, Andrew Karasick, Cecile Punzalan, Colin Schwensohn, Laura Gieraltowski, Cary Chen Parker, Erin Jenkins, Stic Harris

JMIR Public Health Surveill 2025 (Feb 28); 11:e58797

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A Validation Tool (VaPCE) for Postcoordinated SNOMED CT Expressions: Development and Usability Study

Tessa Ohlsen, Viola Hofer, Josef Ingenerf

JMIR Med Inform 2025 (Feb 28); 13:e67984

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Using Structured Codes and Free-Text Notes to Measure Information Complementarity in Electronic Health Records: Feasibility and Validation Study

Tom M Seinen, Jan A Kors, Erik M van Mulligen, Peter R Rijnbeek

J Med Internet Res 2025 (Feb 13); 27:e66910

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A Call for Action: Lessons Learned From a Pilot to Share a Complex, Linked COVID-19 Cohort Dataset for Open Science

Clara Amid, Martine Y van Roode, Gabriele Rinck, Janko van Beek, Rory D de Vries, Gijsbert P van Nierop, Eric C M van Gorp, Frank Tobian, Bas B Oude Munnink, Reina S Sikkema, Thomas Jaenisch, Guy Cochrane, Marion P G Koopmans

JMIR Public Health Surveill 2025 (Feb 11); 11:e63996

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Challenges and Opportunities for Data Sharing Related to Artificial Intelligence Tools in Health Care in Low- and Middle-Income Countries: Systematic Review and Case Study From Thailand

Aprajita Kaushik, Capucine Barcellona, Nikita Kanumoory Mandyam, Si Ying Tan, Jasper Tromp

J Med Internet Res 2025 (Feb 04); 27:e58338

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Smart Contracts and Shared Platforms in Sustainable Health Care: Systematic Review

Carlos Antonio Marino, Claudia Diaz Paz

JMIR Med Inform 2025 (Jan 31); 13:e58575

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Digital Information Exchange Between the Public and Researchers in Health Studies: Scoping Review

Nazli Soltani, Thilo Dietz, Doris Ochterbeck, Jens Dierkes, Katja Restel, Lara Christianson, Karina Karolina De Santis, Hajo Zeeb

J Med Internet Res 2025 (Jan 28); 27:e63373

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Digital Surveillance of Mental Health Care Services in Saudi Arabia: Cross-Sectional Study of National e-Referral System Data

Abdullah A Alharbi, Nawfal A Aljerian, Meshary S Binhotan, Hani A Alghamdi, Ali K Alsultan, Mohammed S Arafat, Abdulrahman Aldhabib, Yasser A Alaska, Eid B Alwahbi, Mohammed A Muaddi, Ahmad Y Alqassim, Ronnie D Horner

JMIR Public Health Surveill 2025 (Jan 24); 11:e64257

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The Impact of Data Control and Delayed Discounting on the Public’s Willingness to Share Different Types of Health Care Data: Empirical Study

Dongle Wei, Pan Gao, Yunkai Zhai

JMIR Med Inform 2025 (Jan 22); 13:e66444

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Effectiveness of the Facility for Elderly Surveillance System (FESSy) in Two Public Health Center Jurisdictions in Japan: Prospective Observational Study

Junko Kurita, Motomi Hori, Sumiyo Yamaguchi, Aiko Ogiwara, Yurina Saito, Minako Sugiyama, Asami Sunadori, Tomoko Hayashi, Akane Hara, Yukari Kawana, Youichi Itoi, Tamie Sugawara, Yoshiyuki Sugishita, Fujiko Irie, Naomi Sakurai

JMIR Med Inform 2025 (Jan 10); 13:e58509

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Visualizing Patient Pathways and Identifying Data Repositories in a UK Neurosciences Center: Exploratory Study

Jo Knight, Vishnu Vardhan Chandrabalan, Hedley C A Emsley

JMIR Med Inform 2024 (Dec 24); 12:e60017

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Strengthening Cause of Death Statistics in Selected Districts of 3 States in India: Protocol for an Uncontrolled, Before-After, Mixed Method Study

Ashoo Grover, Saritha Nair, Saurabh Sharma, Shefali Gupta, Suyesh Shrivastava, Pushpendra Singh, Srikanta Kanungo, Senthanro Ovung, Charan Singh, Abdul Mabood Khan, Sandeep Sharma, Subrata Kumar Palo, Tapas Chakma, Anjali Bajaj

JMIR Res Protoc 2024 (Dec 20); 13:e51493

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Real-Time Triage, Position, and Documentation (TriPoD) During Medical Response to Major Incidents: Protocol for an Action Research Study

Monica Rådestad, Torkel Kanfjäll, Veronica Lindström

JMIR Res Protoc 2024 (Dec 19); 13:e57819

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Insights and Trends in Open Note Access: Retrospective Observational Study

Randeep Singh Badwal, Paul Cavo, Mandip Panesar

J Med Internet Res 2024 (Dec 17); 26:e55982

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“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

JMIR Form Res 2024 (Dec 16); 8:e64343

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Enhancing Standardized and Structured Recording by Elderly Care Physicians for Reusing Electronic Health Record Data: Interview Study

Charlotte A W Albers, Yvonne Wieland-Jorna, Martine C de Bruijne, Martin Smalbrugge, Karlijn J Joling, Marike E de Boer

JMIR Med Inform 2024 (Dec 13); 12:e63710

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Advancing Progressive Web Applications to Leverage Medical Imaging for Visualization of Digital Imaging and Communications in Medicine and Multiplanar Reconstruction: Software Development and Validation Study

Mohammed A. AboArab, Vassiliki T. Potsika, Alexis Theodorou, Sylvia Vagena, Miltiadis Gravanis, Fragiska Sigala, Dimitrios I. Fotiadis

JMIR Med Inform 2024 (Dec 09); 12:e63834

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