Standards and Interoperability

Responsible Governance of Tribal Public Health Data: Data Sharing Ethics and Common Challenges in the US Public Health System

Alec J Calac, Luis R Gasca, William H Swain

J Med Internet Res 2025 (Jun 19); 27:e77249

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Rectifying Genocidal Data Stewardship: A Commentary on Ethical and Legal Obligations for Sharing Data With Tribal Entities

Oliver Bear Don't Walk IV, Lauren W Yowelunh McLester-Davis, Susan Brown Trinidad

J Med Internet Res 2025 (Jun 18); 27:e77946

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Detecting Redundant Health Survey Questions by Using Language-Agnostic Bidirectional Encoder Representations From Transformers Sentence Embedding: Algorithm Development Study

Sunghoon Kang, Hyewon Park, Ricky Taira, Hyeoneui Kim

JMIR Med Inform 2025 (Jun 10); 13:e71687

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Developing Infrastructure to Realize the Value of Patient-Generated Health Data in a Large Integrated Health Care System: The Veterans Health Administration Experience

Terry J Newton, Nilesh Shah, Katherine Lewis, Mark S Zocchi, Felicia R Bixler, Bella Etingen, Jessica M Lipschitz, Stephanie A Robinson, Timothy P Hogan, Stephanie L Shimada

J Med Internet Res 2025 (Jun 06); 27:e70755

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The Potential to Leverage Real-World Data for Pediatric Clinical Trials: A Proof-of-Concept Study

Jens Declerck, Joanne Lee, Anando Sen, Avril Palmeri, Rianne Oostenbrink, Viviana Giannuzzi, Simon Woodworth, Salma Malik, Fenna Mahler, Beate Aurich, Rebecca Leary, Dipak Kalra, Volker Straub

J Med Internet Res 2025 (May 30); 27:e72573

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Identifying and Optimizing Factors Influencing the Implementation of a Fast Healthcare Interoperability Resources Accelerator: Qualitative Study Using the Consolidated Framework for Implementation Research–Expert Recommendations for Implementing Change Approach

Jane Li, Emma Maddock, Michael Hosking, Kate Ebrill, Jeremy Sullivan, Kylynn Loi, Danielle Tavares-Rixon, Rajiv Jayasena, Grahame Grieve, Alana Delaforce

JMIR Med Inform 2025 (May 27); 13:e66421

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Clinician Attitudes and Perceptions of Point-of-Care Information Resources and Their Integration Into Electronic Health Records: Qualitative Interview Study

Marlika Marceau, Sevan Dulgarian, Jacob Cambre, Pamela M Garabedian, Mary G Amato, Diane L Seger, Lynn A Volk, Gretchen Purcell Jackson, David W Bates, Ronen Rozenblum, Ania Syrowatka

JMIR Med Inform 2025 (May 26); 13:e60191

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Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema

Haitham Abaza, Aliaksandra Shutsko, Sophie A I Klopfenstein, Carina N Vorisek, Carsten Oliver Schmidt, Claudia Brünings-Kuppe, Vera Clemens, Johannes Darms, Sabine Hanß, Timm Intemann, Franziska Jannasch, Elisa Kasbohm, Birte Lindstädt, Matthias Löbe, Katharina Nimptsch, Ute Nöthlings, Marisabel Gonzalez Ocanto, Tracy Bonsu Osei, Ines Perrar, Manuela Peters, Tobias Pischon, Ulrich Sax, Matthias B Schulze, Florian Schwarz, Carolina Schwedhelm, Sylvia Thun, Dagmar Waltemath, Atinkut A Zeleke, Wolfgang Müller, Martin Golebiewski

JMIR Med Inform 2025 (May 21); 13:e63906

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Toward Interoperable Digital Medication Records on Fast Healthcare Interoperability Resources: Development and Technical Validation of a Minimal Core Dataset

Eduardo Salgado-Baez, Raphael Heidepriem, Renate Delucchi Danhier, Eugenia Rinaldi, Vishnu Ravi, Akira-Sebastian Poncette, Iris Dahlhaus, Daniel Fürstenau, Felix Balzer, Sylvia Thun, Julian Sass

JMIR Med Inform 2025 (May 09); 13:e64099

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Identifying Medication Review Topics to Be Documented in a Structured Form in Electronic Health Record Systems: Delphi Consensus Survey

Tanja Lindholm, Noora Lias, Kirsi Kvarnström, Anna-Riia Holmström, Terhi Toivo, Marjo Uusitalo, Harri Nurmi, Marja Airaksinen

J Med Internet Res 2025 (May 06); 27:e70133

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Process Re-Engineering and Data Integration Using Fast Healthcare Interoperability Resources for the Multidisciplinary Treatment of Lung Cancer

Ching-Hsiung Lin, Bing-Yen Wang, Sheng-Hao Lin, Pei Hsuan Shih, Chin-Jing Lee, Yung Ting Huang, Shih Chieh Chen, Mei-Lien Pan

JMIR Cancer 2025 (May 05); 11:e53887

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Enhancing Interoperability for a Sustainable, Patient-Centric Health Care Value Chain: Systematic Review for Taxonomy Development

Carlos Antonio Marino, Claudia Diaz Paz

J Med Internet Res 2025 (Apr 25); 27:e69465

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Integrating Health Care Data in an Informatics for Integrating Biology & the Bedside (i2b2) Model Persisted Through Elasticsearch: Design, Implementation, and Evaluation in a French University Hospital

Romain Griffier, Fleur Mougin, Vianney Jouhet

JMIR Med Inform 2025 (Apr 24); 13:e65753

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Interoperability Framework of the European Health Data Space for the Secondary Use of Data: Interactive European Interoperability Framework–Based Standards Compliance Toolkit for AI-Driven Projects

Rada Hussein, Amelie Gyrard, Somayeh Abedian, Philip Gribbon, Sara Alabart Martínez

J Med Internet Res 2025 (Apr 23); 27:e69813

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Fast Healthcare Interoperability Resources (FHIR)–Based Interoperability Design in Indonesia: Content Analysis of Developer Hub’s Social Networking Service

Lukman Heryawan, Yukiko Mori, Goshiro Yamamoto, Naoto Kume, Lutfan Lazuardi, Anis Fuad, Tomohiro Kuroda

JMIR Form Res 2025 (Apr 21); 9:e51270

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Conversion of Sensitive Data to the Observational Medical Outcomes Partnership Common Data Model: Protocol for the Development and Use of Carrot

Samuel Cox, Erum Masood, Vasiliki Panagi, Calum Macdonald, Gordon Milligan, Scott Horban, Roberto Santos, Chris Hall, Daniel Lea, Simon Tarr, Shahzad Mumtaz, Emeka Akashili, Andy Rae, Esmond Urwin, Christian Cole, Aziz Sheikh, Emily Jefferson, Philip Roy Quinlan

JMIR Res Protoc 2025 (Apr 02); 14:e60917

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Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Cason D Schmit, Meghan Curry O’Connell, Sarah Shewbrooks, Charles Abourezk, Fallon J Cochlin, Megan Doerr, Hye-Chung Kum

J Med Internet Res 2025 (Mar 26); 27:e70983

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Exploring Physicians’ Dual Perspectives on the Transition From Free Text to Structured and Standardized Documentation Practices: Interview and Participant Observational Study

Olga Golburean, Rune Pedersen, Line Melby, Arild Faxvaag

JMIR Form Res 2025 (Mar 21); 9:e63902

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Creation of Scientific Response Documents for Addressing Product Medical Information Inquiries: Mixed Method Approach Using Artificial Intelligence

Jerry Lau, Shivani Bisht, Robert Horton, Annamaria Crisan, John Jones, Sandeep Gantotti, Evelyn Hermes-DeSantis

JMIR AI 2025 (Mar 13); 4:e55277

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Data Interoperability in COVID-19 Vaccine Trials: Methodological Approach in the VACCELERATE Project

Salma Malik, Zoi Pana Dorothea, Christos D Argyropoulos, Sophia Themistocleous, Alan J Macken, Olena Valdenmaiier, Frank Scheckenbach, Elena Bardach, Andrea Pfeiffer, Katherine Loens, Jordi Cano Ochando, Oliver A Cornely, Jacques Demotes-Mainard, Sergio Contrino, Gerd Felder

JMIR Med Inform 2025 (Mar 07); 13:e65590

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