Ethical and Legal Considerations in the Collection and Analysis of Mental Health Lived Experience Narratives: Reflections on 4 Case Studies of Research Practice

Stefan Rennick-Egglestone   ^{1, 2} , PhD ;   Laura E R Blackie   ³ , PhD ;   Laura Asher   ⁴ , PhD ;   Rahel Birhane   ^{5, 6} , MSc ;   Wubalem Fekadu   ⁵ , PhD ;   Donna Franklin   ⁷ , MSc ;   Ian James Kidd   ⁸ , PhD ;   Mark Pearson   ^{1, 9} , PhD ;   Elvira Perez Vallejos   ^{10, 11} , PhD ;   Mike Slade   ^{1, 12} , PhD

¹ Institute of Mental Health, School of Health Sciences, University of Nottingham, Nottingham, England, United Kingdom

² National Institute for Health and Care Research (NIHR) Nottingham Biomedical Research Centre, Nottingham, England, United Kingdom

³ School of Psychology, University of Nottingham, Nottingham, England, United Kingdom

⁴ Academic Unit of Lifespan and Population Health, School of Medicine, University of Nottingham, Nottingham, England, United Kingdom

⁵ WHO Collaborating Centre for Mental Health Research & Capacity Building, Department of Psychiatry, School of Medicine, College of Health Sciences, Addis Ababa University, Addis Ababa, Ethiopia

⁶ Centre for Innovative Drug Development and Therapeutic Trials for Africa (CDT-Africa), Addis Ababa University, Addis Ababa, Ethiopia

⁷ Sheffield Centre for Health and Related Research (SCHARR), Division of Population Health, School of Medicine, University of Sheffield, Sheffield, England, United Kingdom

⁸ Department of Philosophy, University of Nottingham, Nottingham, England, United Kingdom

⁹ Lincolnshire Unit for Mental Health Research (LUMHR), University of Lincoln, Lincoln, England, United Kingdom

¹⁰ School of Medicine, University of Nottingham, Nottingham, England, United Kingdom

¹¹ School of Computer Science, University of Nottingham, Nottingham, England, United Kingdom

¹² Health and Community Participation Division, Faculty of Nursing and Health Sciences, Nord University, Namsos, Nordland, Norway