Abstract
This cross-sectional survey of US Departments of Correction websites found significant heterogeneity in the availability and content of prison-based research policy, procedure, and contact information.
JMIR Form Res 2025;9:e76835doi:10.2196/76835
Keywords
Introduction
Mass incarceration poses a public health crisis in the United States as a major structural determinant of health []. Exposure to incarceration heightens risks of chronic conditions, including cardiovascular disease and cancer, while significantly increasing all-cause mortality []. Prior unethical research resulted in federal restrictions on research conducted on criminal-legal involved populations []. Varied interpretations of federal regulations have led to heterogenous operationalization of research systems, evidenced in varied state Department of Corrections (DOC) policies in state prisons. Ethical research is needed to measure health-related outcomes for those in prisons; however, these varied interpretations of federal regulations create barriers. We evaluated the accessibility of research-related information on publicly available websites of state DOCs.
Methods
Overview
We iteratively developed an 8-point rubric for evaluating the digital imprint and internet-accessible completeness of each state’s DOC’s research policies. Two research team members (JM-K and DM) independently located DOC-based websites (June-August 2023). If the state had a website, the research team sought the presence of a DOC-based research web page. States lacking any DOC website or web page were excluded. For states lacking either a DOC website or a DOC-based research web page, researchers searched “[STATE] Research Department of Corrections” to assess for external websites containing information about prison-based research policies and procedures that appeared within 25 search results.
If a DOC research website or web page was found for a given state, we assigned up to 8 points, analyzing for the (1) presence of contact information provided for a DOC’s research-related representative and responsiveness within 3 weeks to initiated contact, (2) identification of an institutional review board (IRB) and available policy information. Of available policy information, we evaluated for the presence of policies for (3) staff recruitment, (4) incarcerated people’s recruitment, (5) staff consent, (6) incarcerated people’s consent, (7) staff stipends/payment, and (8) incarcerated people’s stipends/payment. Criteria were piloted on 15 states to ensure interrater reliability (>75%) before assessing the remaining 35, with a final interrater reliability of 94.4%. All data were stored in Qualtrics []. Eight-point scores are visualized in , and descriptive univariate analysis for categorical variables is reported in .

| States, n/N (%) | |||
| Total states | |||
| States with a DOC-specific website | 48/50 (96) | ||
| Sates with a research web page on the website | 33/50 (66) | ||
| If no research web page, research resources found through Google search in the first 25 results | 10/50 (20) | ||
| No research web page or easily found information from Google searches | 5/50 (10) | ||
| Subanalysis of research policies on research web pages | |||
| Availability of research policies on research web pages | |||
| Research policies downloadable from web pages | 29/33 (88) | ||
| Research policies/procedures directly available on web pages without download | 7/33 (21) | ||
| Reference to research policies but not linked to web pages/required separate searches | 1/33 (3) | ||
| No reference to policies or procedures | 3/33 (9) | ||
| Contact email/phone available | 25/33 (76) | ||
| Content of policies on research web pages (available both directly and/or downloadable) | |||
| Recruitment of staff | 22/29 (76) | ||
| Consent of staff | 24/29 (83) | ||
| Payment of staff | 14/29 (48) | ||
| Recruitment of people who are incarcerated | 23/29 (79) | ||
| Consent of people who are incarcerated | 24/29 (83) | ||
| Payment of people who are incarcerated | 18/29 (62) | ||
| External institutional review board requirements | 20/29 (69) | ||
aDOC: Department of Corrections.
Ethical Considerations
This qualitative study was conducted on publicly available data and thus was deemed nonhuman subject research by the Tufts University Health Sciences IRB.
Results
Two state DOCs’ (Alaska and Hawaii) websites were unavailable; only 33 of the remaining 48 states’ research web pages were available. Less than half of states had web page–accessible policies available about consent, recruitment, or use of incentives for staff or incarcerated participants (). We received a response via phone or email from only 23 of the 25 DOC web pages that provided contact information. While similar in number, the states that provided information about incarcerated participants and those that provided information about involved staff only partially overlapped, and several only provided policies for group or the other.
Discussion
We observed significant heterogeneity in the availability and content of state DOC websites and research web pages, with most DOCs having little information readily available. For instance, only 20 DOC web pages explicitly mentioned IRB requirements, and as few as 14 states had policies available describing staff payments. Barriers to accessing DOC-specific policies have impeded researchers interested in developing prison-based research questions and studies aiming to improve conditions and health outcomes in these settings [,]. By extension, the limited accessibility demonstrated herein could hinder future research. Furthermore, limited access to research can be harmful, as demonstrated by HIV’s impact on incarcerated populations []. The COVID-19 pandemic reenforced this and displayed how research partnership across carceral, academic, and public sectors are needed to mitigate harm [,]. Decreasing barriers and increasing the web-based availability of prison research policies is therefore a reasonable first step to support impactful and feasible research.
Our evaluation was cross-sectional, and websites may change rapidly, reflecting funding or policy, as evidenced by current DOC websites for Alaska and Hawaii that were not available for analysis in 2023. Repeat analysis may reveal changes to other DOC websites as well. Furthermore, public-facing information on prison-based research does not necessarily translate into actual collaboration between researchers and state DOCs, and assessments of virtual information do not capture existing relationships among researchers, prison-based populations, and DOCs. Further analysis should focus on the cascade of research projects (eg, submitted, approved, and published) in each state to better understand how this accessibility translates to research partnerships. Conceivably, increasing the digital availability of DOCs’ research policies will facilitate research initiation and partnerships to improve health outcomes for incarcerated individuals.
Acknowledgments
This study received funding from the Tufts University School of Medicine Harold Williams, M.D. Summer Research Fellowship. The funders approved the design and conduct of this study and did not administer any of the collection, management, analysis, and interpretation of the data; preparation, review, or approval of the manuscript; and decision to submit the manuscript for publication. Generative artificial intelligence was not used in any portion of manuscript writing.
Data Availability
The datasets generated or analyzed during this study are available from the corresponding author on reasonable request.
Authors' Contributions
Conceptualization: AW
Data curation: JM-K and DM
Formal analysis: JM-K and DM
Investigation: JM-K and DM
Methodology: AW, JM-K, DM, LB-R, NV, and JG
Supervision: AW
Visualization: JM-K and DM
Writing—original draft: AW, JM-K, DM, LB-R, NV, and JG
Writing—review and editing: AW, JM-K, DM, LB-R, NV, and JG
Conflicts of Interest
None declared.
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Abbreviations
| DOC : Department of Corrections |
| IRB: institutional review board |
Edited by Naomi Cahill; submitted 01.05.25; peer-reviewed by Jay M Brenner, Lara B Strick; final revised version received 02.07.25; accepted 03.07.25; published 20.08.25.
Copyright© Jesse Martinez-Kratz, David Manning, Noel Vest, Jason Glenn, Lauren Brinkley-Rubinstein, Alysse Wurcel. Originally published in JMIR Formative Research (https://formative.jmir.org), 20.8.2025.
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