“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

Emily Eidenier Pearce   ¹ , MPH, PhD ;   Alina Majid   ² , MPH ;   Toniya Brown   ³ , BA ;   Rowan Forbes Shepherd   ¹ , PhD ;   Camella Rising   ¹ , MS, RDN, PhD ;   Catherine Wilsnack   ¹ , LMSW, MSW ;   Ashley S Thompson   ¹ , MSGC ;   Melissa B Gilkey   ⁴ , MPH, PhD ;   Kurt M Ribisl   ⁴ , PhD ;   Allison J Lazard   ⁵ , PhD ;   Paul KJ Han   ⁶ , MD, MA, MPH ;   Allison Werner-Lin   ¹ , LCSW, PhD ;   Sadie P Hutson   ¹ , RN, PhD ;   Sharon A Savage   ¹ , MD

¹ Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, National Institutes of Health, Rockville, MD, United States

² Healthcare Delivery Research Program, National Cancer Institute, National Institutes of Health, Rockville, MD, United States

³ Trans-Divisional Research Program, National Cancer Institute, National Institutes of Health, Rockville, MD, United States

⁴ Department of Health Behavior, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States

⁵ Hussman School of Journalism and Media, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States

⁶ Behavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Rockville, MD, United States