This paper is in the following e-collection/theme issue:

Development and Evaluation of Research Methods, Instruments and Tools (481) Design and Usability of Consumer Health Tech and Home Monitoring Devices (218) Computer-Aided Diagnosis (128) Clinical Information and Decision Making (1407) Decision Support for Health Professionals (1185) Consumer & Patient Education and Shared-Decision Making (679) Clinical Informatics (1022)

Published on in Vol 8 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/49720, first published .
Assessing the Utility of a Patient-Facing Diagnostic Tool Among Individuals With Hypermobile Ehlers-Danlos Syndrome: Focus Group Study

Assessing the Utility of a Patient-Facing Diagnostic Tool Among Individuals With Hypermobile Ehlers-Danlos Syndrome: Focus Group Study

Assessing the Utility of a Patient-Facing Diagnostic Tool Among Individuals With Hypermobile Ehlers-Danlos Syndrome: Focus Group Study

Authors of this article:

Jessica Goehringer1 Author Orcid Image ;   Abigail Kosmin2, 3 Author Orcid Image ;   Natalie Laible2, 4 Author Orcid Image ;   Katrina Romagnoli5 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Jessica Goehringer   1 * , MS ;   Abigail Kosmin   2, 3 * , MS ;   Natalie Laible   2, 4 * , MS ;   Katrina Romagnoli   5 * , MS, MLIS, PhD

1 Department of Genomic Health, Geisinger, Danville, PA, United States

2 Joan H. Marks Graduate Program in Human Genetics, Sarah Lawrence College, Bronxville, NY, United States

3 Magee-Womens Hospital, Pittsburgh, PA, United States

4 GeneScreen Counseling, Bernardsville, NJ, United States

5 Department of Population Health Sciences, Geisinger, Danville, PA, United States

*all authors contributed equally

Corresponding Author:

  • Jessica Goehringer, MS
  • Department of Genomic Health
  • Geisinger
  • 100 North Academy Avenue
  • Dept of Genomic Health
  • Danville, PA, 17822
  • United States
  • Phone: 1 5702141005
  • Email: jgoehringer@geisinger.edu