This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (2500) Peer-to-Peer Support and Online Communities (652) Participatory Medicine & E-Patients (787) Information Seeking, Information Needs (483)

Published on in Vol 7 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/41610, first published .
Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community

Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community

Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community

Authors of this article:

Sadaf Ashtari1 Author Orcid Image ;   Adam Taylor1 Author Orcid Image
Article Authors Cited by (2) Tweetations (3) Metrics

Journals

  1. Boyce L, Prybutok G, Prybutok V. Online groups show how technology supports healthcare needs for patients and families: an illustrative model for COPD facebook groups. Frontiers in Medical Engineering 2024;2 View
  2. Somers C, McCusker C, Prendeville P, Kelleher S. The centrality of healthcare and education interactions – An Interpretive Phenomenological Analysis of experiences of parents of children with Ehlers-Danlos Syndrome. Research in Developmental Disabilities 2024;151:104789 View