This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (2500) Peer-to-Peer Support and Online Communities (652) Participatory Medicine & E-Patients (787) Information Seeking, Information Needs (483)

Published on in Vol 7 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/41610, first published .
Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community

Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community

Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community

Authors of this article:

Sadaf Ashtari1 Author Orcid Image ;   Adam Taylor1 Author Orcid Image
Article Authors Cited by (2) Tweetations (3) Metrics

Sadaf Ashtari   1 , PhD ;   Adam Taylor   1 , MBA

1 Information Systems and Business Analytics department, California State University, Sacramento, Sacramento, CA, United States

Corresponding Author:

  • Sadaf Ashtari, PhD
  • Information Systems and Business Analytics department
  • California State University, Sacramento
  • 6000 J Street
  • Tahoe Hall 2086
  • Sacramento, CA, 95819
  • United States
  • Phone: 1 9162787102
  • Email: sadaf.ashtari@csus.edu