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This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (3541) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1994) Infodemiology and Infoveillance (1613) Infoveillance, Infodemiology, Digital Disease Surveillance, Infodemic Management (1170) Reviews on Usage or other Formative Evaluation Metrics (59)

Published on in Vol 6, No 3 (2022): March

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/31135, first published .
Examining the Influence on Perceptions of Endometriosis via Analysis of Social Media Posts: Cross-sectional Study

Examining the Influence on Perceptions of Endometriosis via Analysis of Social Media Posts: Cross-sectional Study

Examining the Influence on Perceptions of Endometriosis via Analysis of Social Media Posts: Cross-sectional Study

Authors of this article:

Julian Matthias Metzler1 Author Orcid Image ;   Dimitrios Rafail Kalaitzopoulos1 Author Orcid Image ;   Laurin Burla1 Author Orcid Image ;   Gabriel Schaer1 Author Orcid Image ;   Patrick Imesch1 Author Orcid Image
Article Authors Cited by (21) Tweetations (8) Metrics

Journals

  1. Thurnherr N, Burla L, Metzler J, File B, Imesch P. Attitudes and perceptions of affected women towards endocrine endometriosis therapy: an international survey based on free-word association networks. Human Reproduction 2024;39(1):83 View
  2. Goel R, Modhukur V, Täär K, Salumets A, Sharma R, Peters M. Users’ Concerns About Endometriosis on Social Media: Sentiment Analysis and Topic Modeling Study. Journal of Medical Internet Research 2023;25:e45381 View
  3. Kalaitzopoulos D, Samartzis N, Eberhard M, Grigoriadis G, Miliaras D, Papanikolaou A, Daniilidis A. Co-Existence of Endometriosis with Ovarian Dermoid Cysts: A Retrospective Cohort Study. Journal of Clinical Medicine 2023;12(19):6308 View
  4. Stanek D, Hestbjerg I, Hansen K, Tomlinson M, Kirk U. Not “just a bad period”— The impact of a co-created endometriosis social media health campaign: a mixed methods study. Frontiers in Communication 2023;8 View
  5. Reinhardt A, Eitze S. Breaking the endometriosis silence: a social norm approach to reducing menstrual stigma and policy resistance among young adults. Psychology & Health 2025;40(6):881 View
  6. Adler H, Lewis M, Ng C, Brooks C, Leonardi M, Mikocka-Walus A, Bush D, Semprini A, Wilkinson-Tomey J, Condous G, Patravali N, Abbott J, Armour M. Social Media, Endometriosis, and Evidence-Based Information: An Analysis of Instagram Content. Healthcare 2024;12(1):121 View
  7. Niedenfuehr J, King L. The Barriers That Adolescents and Young Adults with Endometriosis Experience in the United States: A Conceptual Review and Model. Sexuality Research and Social Policy 2025;22(2):580 View
  8. Adler H, Jeffrey S, Ashton L, Howe D, O’Shea M, Ng C, Last L, Wilson-King G, Bush D, Armour M. The Language of Endometriosis Prevalence: How Can Gender Inclusivity and Accuracy Coexist?. Women's Reproductive Health 2024:1 View
  9. Oliveira J, Eskandar K, Kar E, de Oliveira F, Filho A. Understanding AI’s Role in Endometriosis Patient Education and Evaluating Its Information and Accuracy: Systematic Review. JMIR AI 2024;3:e64593 View
  10. Bologna F, Thalken R, Pepin K, Wilkens M. Endometriosis Communities on Reddit: Quantitative Analysis. Journal of Medical Internet Research 2025;27:e57987 View
  11. Alves S, Assis R, Yamachi C, Santos J, Araujo Júnior E, Sun S. Approach to external cephalic version through social media: experience from a tertiary center in Brazil. Revista da Associação Médica Brasileira 2025;71(3) View
  12. Burla L, Metzler J, Kalaitzopoulos D, Kamm S, Ormos M, Passweg D, Schraag S, Samartzis E, Samartzis N, Witzel I, Imesch P. Artificial intelligence in endometriosis care: A comparative analysis of large language model and human specialist responses to endometriosis-related queries. European Journal of Obstetrics & Gynecology and Reproductive Biology 2025;313:114625 View
  13. Ahuja V, Kaur R, Tabeck P, Pande N, Singh N. Building Trust and Engagement: Mapping Social Media’s Role in Digital Healthcare Communication. Journal of Relationship Marketing 2025:1 View
  14. Loughran A, Daken K, Plessis C, Mullens A. How Women with Endometriosis Use Social Media for Support and Self-Management: An Analysis of Reddit Content. International Journal of Environmental Research and Public Health 2025;22(11):1706 View
  15. Gamlin C, Swift E. Welcome to the EndoHood: A Scoping Review of Social Media Spaces for those with Endometriosis. Current Women s Health Reviews 2026;22(3) View
  16. Bayrak S, Allak A, Neugebauer T, Pardon S, Yilmaz-Aslan Y, Schiermeier S, Kiessling C, Schmiedl S, Dockweiler C, Brzoska P. Barriers and Facilitators Affecting the Care of Patients with Endometriosis: A Scoping Review. Geburtshilfe und Frauenheilkunde 2026;86(02):189 View
  17. Niedermeier R, Castelletti N, Bender A, Hoelscher M, Ivanova O. Interpretations of Menstrual Blood Appearance and Diagnostic Potential Among Social Media Users: Cross-Sectional Mixed Methods Social Media Listening Study. Journal of Medical Internet Research 2026;28:e85550 View
  18. Hu Y, Ngai C, Koon A. Humor in Social Media Health Communication: A Systematic Review of Strategic Uses and Effects. Behavioral Sciences 2026;16(4):509 View
  19. Graham A, Nickel B, McCaffery K, Doust J, Cvejic E, Copp T. Social Media Health Information Formats and Endometriosis Treatment-Seeking Intentions: A Randomized Controlled Trial. Medical Decision Making 2026 View
  20. Kemal Harzif A, Permatasari I, Elsiyana T, Kurniawan P, Puspawardani A, Novianti L, Hiksas R, Widyana R, Shadrina A, Silvana V, Sumapraja K. Endometriosis awareness month: a thematic analysis of content on Instagram. European Journal of Obstetrics & Gynecology and Reproductive Biology 2026;323:115146 View

Books/Policy Documents

  1. Tomlinson M. The Menstrual Movement in the Media. View