This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (2803) User-centred Design Case Studies (640) Supporting Informal Care and Caregivers (334) Focus Groups and Qualitative Research for Human Factors Research (1020) Supporting Home Care and Family Caregivers (224) Birth Defects (15) Developmental Problems (63)

Published on in Vol 6, No 1 (2022): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/28895, first published .
Exploring the Experiences of Family Caregivers of Children With Special Health Care Needs to Inform the Design of Digital Health Systems: Formative Qualitative Study

Exploring the Experiences of Family Caregivers of Children With Special Health Care Needs to Inform the Design of Digital Health Systems: Formative Qualitative Study

Exploring the Experiences of Family Caregivers of Children With Special Health Care Needs to Inform the Design of Digital Health Systems: Formative Qualitative Study

Authors of this article:

Ryan Tennant1 Author Orcid Image ;   Sana Allana1 Author Orcid Image ;   Kate Mercer1, 2 Author Orcid Image ;   Catherine M Burns1 Author Orcid Image
Article Authors Cited by (8) Tweetations (2) Metrics

Journals

  1. Tennant R, Allana S, Mercer K, Burns C. Caregiver Expectations of Interfacing With Voice Assistants to Support Complex Home Care: Mixed Methods Study. JMIR Human Factors 2022;9(2):e37688 View
  2. Perez H, Miguel-Cruz A, Daum C, Comeau A, Rutledge E, King S, Liu L. Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility. Applied Clinical Informatics 2022;13(05):1181 View
  3. Savela R, Nykänen I, Välimäki T. Lack of freedom predicted poor self‐reported health among family caregivers of children with disabilities during the COVID‐19 pandemic in Europe. Nursing Open 2023;10(8):5177 View
  4. Benmessaoud C, Pfisterer K, De Leon A, Saragadam A, El-Dassouki N, Young K, Lohani R, Xiong T, Pham Q. Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study. JMIR Human Factors 2023;10:e45035 View
  5. Tennant R, Allana S, Mercer K, Burns C. Capturing Home Care Information Management and Communication Processes Among Caregivers of Older Adults: Qualitative Study to Inform Technology Design. JMIR Formative Research 2024;8:e53289 View
  6. Barbazi N, Shin J, Hiremath G, Lauff C. Developing Assessments for Key Stakeholders in Pediatric Congenital Heart Disease: Qualitative Pilot Study to Inform Designing of a Medical Education Toy. JMIR Formative Research 2025;9:e63818 View
  7. Nonoyama T, Kadoma A, Kaneko T, Niinomi K, Ozaki I, Asano M. Psychosocial support and care for children with special healthcare needs and their families: A scoping review for enhancing the care system. Medicine 2025;104(12):e41944 View

Conference Proceedings

  1. Sepehri K, Holsti L, Niasati S, Chan V, Maclean K. Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems. Beyond the Bulging Binder: Family-Centered Design of a Digital Health Information Management System for Caregivers of Children Living with Health Complexity View