This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (2832) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1793) Participatory Medicine & E-Patients (829) Participatory Design and Participatory Research (366) User-centred Design Case Studies (649) Epidemiology (175) Participatory Epidemiology and Surveillance (123)

Published on in Vol 5, No 3 (2021): March

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/22695, first published .
Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Authors of this article:

Roxana Radu1 Author Orcid Image ;   Sara Hernández-Ortega2 Author Orcid Image ;   Oriol Borrega3 Author Orcid Image ;   Avril Palmeri4 Author Orcid Image ;   Dimitrios Athanasiou5 Author Orcid Image ;   Nicholas Brooke1 Author Orcid Image ;   Inma Chapí3 Author Orcid Image ;   Anaïs Le Corvec6 Author Orcid Image ;   Michela Guglieri4 Author Orcid Image ;   Alexandre Perera-Lluna7 Author Orcid Image ;   Jon Garrido-Aguirre7 Author Orcid Image ;   Bettina Ryll8 Author Orcid Image ;   Begonya Nafria Escalera2 Author Orcid Image
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JMIR Publications JMIR Publications @jmirpub

JMIR Formative Res: Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Res… https://t.co/9CUVufTK60

12:50 PM · Mar 29, 2021

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RT @jmirpub: JMIR Formative Res: Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Plat…

1:48 PM · Mar 29, 2021

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Paperbirds_Oncology Paperbirds_Oncology @PaperbirdsO

New article: Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research:… https://t.co/Ohua8VHZic

4:07 AM · Mar 30, 2021

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RareDiseasesSW RareDiseasesSW @rare_sw

Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Deve… https://t.co/8geVOoY85j

7:26 AM · Mar 30, 2021

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Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Deve… https://t.co/EDMygz3lui

3:14 AM · Mar 31, 2021

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Gabotto Gabotto @Nakedigweed

RT @ingentium_mel: Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Developme…

3:05 PM · Mar 31, 2021

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Institut de Recerca Sant Joan de Déu Institut de Recerca Sant Joan de Déu @IRSJD_info

???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Resea… https://t.co/a66wzzjLDS

8:04 AM · Apr 06, 2021

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Share4Rare_es Share4Rare_es @Share4Rare_es

RT @IRSJD_info: ???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Pla…

8:37 AM · Apr 06, 2021

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Recerca Recerca @recercat

RT @IRSJD_info: ???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Pla…

9:08 AM · Apr 06, 2021

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Hospital Sant Joan de Déu Barcelona CAT Hospital Sant Joan de Déu Barcelona CAT @SJDbarcelona_ca

RT @IRSJD_info: ???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Pla…

1:05 PM · Apr 06, 2021

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RT @IRSJD_info: ???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Pla…

1:53 PM · Apr 06, 2021

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Share4Rare Share4Rare @Share4Rare

RT @IRSJD_info: ???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Pla…

2:49 PM · Apr 06, 2021

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Begonya Nafría Begonya Nafría @BegonyaNafria

RT @IRSJD_info: ???? #NEWPAPERIRSJD "Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Pla…

7:16 PM · Apr 06, 2021

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Share4Rare Share4Rare @Share4Rare

Happiness&gratitude! ???? ???? Proud to share with you our big moment of celebration since our peer-reviewed pub is final… https://t.co/qBpkM1uUZS

12:00 PM · Apr 09, 2021

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TREAT-NMD TREAT-NMD @TREAT_NMD

RT @Share4Rare: Happiness&gratitude! ???? ???? Proud to share with you our big moment of celebration since our peer-reviewed pub is finally out!…

2:54 PM · Apr 09, 2021

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Share4Rare_es Share4Rare_es @Share4Rare_es

???? ¡Por fin se ha publicado nuestro artículo científico sobre la plataforma #Share4Rare! "Global Collaborative Soc… https://t.co/PE2M7GSIv5

9:50 AM · Apr 10, 2021

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Enric M Garcia Enric M Garcia @m_enricgl

RT @Share4Rare_es: ???? ¡Por fin se ha publicado nuestro artículo científico sobre la plataforma #Share4Rare! "Global Collaborative Social N…

9:58 AM · Apr 10, 2021

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Pilar Rivera-Ortega Pilar Rivera-Ortega @PilarRiveraOrt1

RT @Share4Rare_es: ???? ¡Por fin se ha publicado nuestro artículo científico sobre la plataforma #Share4Rare! "Global Collaborative Social N…

10:04 AM · Apr 10, 2021

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JMIR Publications JMIR Publications @jmirpub

RT @Share4Rare_es: ???? ¡Por fin se ha publicado nuestro artículo científico sobre la plataforma #Share4Rare! "Global Collaborative Social N…

12:01 PM · Apr 10, 2021

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Asociación Leonesa de Enfermedades Raras (ALER) Asociación Leonesa de Enfermedades Raras (ALER) @asociacion_aler

RT @Share4Rare_es: ???? ¡Por fin se ha publicado nuestro artículo científico sobre la plataforma #Share4Rare! "Global Collaborative Social N…

2:18 PM · Apr 10, 2021

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Hospital Sant Joan de Déu Barcelona ES Hospital Sant Joan de Déu Barcelona ES @SJDbarcelona_es

RT @Share4Rare_es: ???? ¡Por fin se ha publicado nuestro artículo científico sobre la plataforma #Share4Rare! "Global Collaborative Social N…

6:50 AM · Apr 12, 2021

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Begonya Nafría Begonya Nafría @BegonyaNafria

RT @jmirpub: JMIR Formative Res: Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Plat…

6:44 PM · Apr 17, 2021

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Begonya Nafría Begonya Nafría @BegonyaNafria

RT @PaperbirdsO: New article: Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platfor…

6:44 PM · Apr 17, 2021

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