This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (2491) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1666) Participatory Medicine & E-Patients (787) Participatory Design and Participatory Research (333) User-centred Design Case Studies (602) Epidemiology (161) Participatory Epidemiology and Surveillance (119)

Published on in Vol 5, No 3 (2021): March

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/22695, first published .
Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study

Authors of this article:

Roxana Radu1 Author Orcid Image ;   Sara Hernández-Ortega2 Author Orcid Image ;   Oriol Borrega3 Author Orcid Image ;   Avril Palmeri4 Author Orcid Image ;   Dimitrios Athanasiou5 Author Orcid Image ;   Nicholas Brooke1 Author Orcid Image ;   Inma Chapí3 Author Orcid Image ;   Anaïs Le Corvec6 Author Orcid Image ;   Michela Guglieri4 Author Orcid Image ;   Alexandre Perera-Lluna7 Author Orcid Image ;   Jon Garrido-Aguirre7 Author Orcid Image ;   Bettina Ryll8 Author Orcid Image ;   Begonya Nafria Escalera2 Author Orcid Image
Article Authors Cited by (8) Tweetations (21) Metrics

Roxana Radu   1 , MS ;   Sara Hernández-Ortega   2 , PhD ;   Oriol Borrega   3 , BA ;   Avril Palmeri   4 , BBA ;   Dimitrios Athanasiou   5 , MBA ;   Nicholas Brooke   1 , MBA ;   Inma Chapí   3 , MA ;   Anaïs Le Corvec   6 , BA ;   Michela Guglieri   4 , MD, PhD ;   Alexandre Perera-Lluna   7 , PhD ;   Jon Garrido-Aguirre   7 , MSc ;   Bettina Ryll   8 , MD, PhD ;   Begonya Nafria Escalera   2 , BA

1 The Synergist, Brussels, Belgium

2 Sant Joan de Déu Research Institute, Esplugues de Llobregat, Spain

3 Omada Interactiva SL, Barcelona, Spain

4 John Walton Muscular Dystrophy Research Centre, Newcastle University, Newcastle, United Kingdom

5 Stichting United Parent Projects Muscular Dystrophy, World Duchenne Organization, Amsterdam, Netherlands

6 ClicLab, Barcelona, Spain

7 Center for Biomedical Engineering Research, Universitat Politècnica de Catalunya, Barcelona, Spain

8 Melanoma Patient Network Europe, Uppsala, Sweden

Corresponding Author: