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Incorporating Patient-Reported Outcome Measures and Patient-Reported Experience Measures in Addiction Treatment Services in Belgium: Naturalistic, Longitudinal, Multicenter Cohort Study

Incorporating Patient-Reported Outcome Measures and Patient-Reported Experience Measures in Addiction Treatment Services in Belgium: Naturalistic, Longitudinal, Multicenter Cohort Study

Increasing emphasis on service users’ perspectives in measuring treatment outcomes and experiences has recently led to the introduction of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in SUD and other mental health services [19-22]. PROMs refer to individual, subjective treatment outcomes, including information about psychological well-being, quality of life, symptomatology, and physical functioning.

Amine Zerrouk, Charlotte Migchels, Clara De Ruysscher, Kim Fernandez, Jerome Antoine, Florian De Meyer, Frieda Matthys, Wim van den Brink, Cleo Lina Crunelle, Wouter Vanderplasschen

JMIR Form Res 2025;9:e65686

App- and Wearable-Based Remote Monitoring for Patients With Myasthenia Gravis and Its Specialists: Feasibility and Usability Study

App- and Wearable-Based Remote Monitoring for Patients With Myasthenia Gravis and Its Specialists: Feasibility and Usability Study

Those digital health interventions hold potential for bridging the care gap by offering individualized support based on continuous health data derived from both subjective patient-reported outcome measures (PROMs) and objective wearable and sensor-based data.

Maike Stein, Regina Stegherr, Pushpa Narayanaswami, David Legg, Meret Herdick, Andreas Meisel, Lea Gerischer, Sophie Lehnerer

JMIR Form Res 2025;9:e58266

Patient Voices: Multimethod Study on the Feasibility of Implementing Electronic Patient-Reported Outcome Measures in a Comprehensive Cancer Center

Patient Voices: Multimethod Study on the Feasibility of Implementing Electronic Patient-Reported Outcome Measures in a Comprehensive Cancer Center

Patient-reported outcome measures (PROMs) are questionnaires for the self-assessment of patients’ symptoms, well-being, and functional status associated with their health condition, without interpretation by a clinician or anyone else [1,2]. Well-validated PROMs are considered the gold standard for the collection of subjective health-related outcomes [3,4].

Cinzia Brunelli, Sara Alfieri, Emanuela Zito, Marco Spelta, Laura Arba, Linda Lombi, Luana Caselli, Augusto Caraceni, Claudia Borreani, Anna Roli, Rosalba Miceli, Gabriele Tine', Ernesto Zecca, Marco Platania, Giuseppe Procopio, Nicola Nicolai, Luigi Battaglia, Laura Lozza, Morena Shkodra, Giacomo Massa, Daniele Loiacono, Giovanni Apolone

JMIR Cancer 2025;11:e56625

Content Validity and Psychometric Properties of the German Version of the Holm and Cordoba Urinary Tract Infection Score for Uncomplicated Urinary Tract Infections in Women: Protocol for a Validation Study

Content Validity and Psychometric Properties of the German Version of the Holm and Cordoba Urinary Tract Infection Score for Uncomplicated Urinary Tract Infections in Women: Protocol for a Validation Study

Patient-reported outcome measures (PROMs) are increasingly used in medical research and patient care since researchers, clinicians, and decisions makers are becoming increasingly aware that the patients’ perspective is crucial when evaluating the efficacy of treatments and the quality of health services [1].

Katharina Piontek, Sophie Nestler, Anne Holm, John Brandt Brodersen, Christian Apfelbacher

JMIR Res Protoc 2024;13:e49903

Investigating Digital Patient-Reported Outcome Measures in Patient-Centered Diabetes Specialist Outpatient Care (DigiDiaS): Protocol for a Multimethod Prospective Observational Study

Investigating Digital Patient-Reported Outcome Measures in Patient-Centered Diabetes Specialist Outpatient Care (DigiDiaS): Protocol for a Multimethod Prospective Observational Study

In addition, the clinical value of the PROMs has not been established, and the adaptation of standardized PROMs used in research might not be straightforward because the measures are usually lengthy and time-consuming to answer for the patient and to interpret for the clinician. The use of PROMs in previous research has varied widely in terms of using one or several PROMs, using disease-specific or generic PROMs, and determining at what times or under which conditions the measures are used [11].

Astrid Torbjørnsen, Ingeborg Spildo, Maria Aadland Mollestad, Annesofie Lunde Jensen, Tone Singstad, Nina Mickelson Weldingh, Pål Joranger, Lis Ribu, Heidi Holmen

JMIR Res Protoc 2024;13:e52766

Effectiveness of Telemedicine for Musculoskeletal Disorders: Umbrella Review

Effectiveness of Telemedicine for Musculoskeletal Disorders: Umbrella Review

In addition, in recent years, an increasing number of studies have used patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) to evaluate telemedicine services [8]. With the increasing maturity of telemedicine applications and higher evidence levels, the use of PROMs has increased.

Silvia Bargeri, Greta Castellini, Jacopo Antonino Vitale, Stefania Guida, Giuseppe Banfi, Silvia Gianola, Federico Pennestrì

J Med Internet Res 2024;26:e50090

Assessing Patient-Reported Outcomes in Routine Cancer Clinical Care Using Electronic Administration and Telehealth Technologies: Realist Synthesis of Potential Mechanisms for Improving Health Outcomes

Assessing Patient-Reported Outcomes in Routine Cancer Clinical Care Using Electronic Administration and Telehealth Technologies: Realist Synthesis of Potential Mechanisms for Improving Health Outcomes

Interest in using patient-reported outcome measures (PROMs) in routine cancer care has steadily increased. Until recently, systematically collecting patient-reported outcomes in routine cancer care to improve health outcomes, such as health-related quality of life (HRQOL), has not been supported by evidence. However, the impact on other measures, such as patient satisfaction and clinician-patient communication, has been consistently demonstrated [1-3].

Ramkumar Govindaraj, Meera Agar, David Currow, Tim Luckett

J Med Internet Res 2023;25:e48483

National Implementation of an Electronic Patient-Reported Outcome Measures Program for Joint Replacement Surgery: Pilot Study

National Implementation of an Electronic Patient-Reported Outcome Measures Program for Joint Replacement Surgery: Pilot Study

Patient-reported outcome measures (PROMs) provide an indicator of surgical thresholds and treatment effects, with the potential to improve health care outcomes within the health care sector for these increasingly common and resource-intensive procedures. Guidelines have been produced regarding the types of PROMs that should be collected [1,2].

Emma L Heath, Ilana Ackerman, Michelle Lorimer, Sophia Rainbird, Grace O'Donohue, Andrew Brock, Stephen Graves, Ian Harris

JMIR Form Res 2022;6(4):e30245

Authors’ Reply to: Challenges in Measuring What Matters to Patients With Diabetes. Comment on “Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review”

Authors’ Reply to: Challenges in Measuring What Matters to Patients With Diabetes. Comment on “Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review”

First, the selection criteria of our systematic review were restricted to patient-reported outcome measures (PROMs) that are tested in patients with type 2 diabetes mellitus (T2 DM) only. The study on the development and validation of the National Diabetes Register Survey included patients with other forms of diabetes (ie, type 1 diabetes) [3], and, therefore, was excluded from our analysis.

Yu Heng Kwan, Jie Kie Phang, Sungwon Yoon, Lian Leng Low

J Med Internet Res 2022;24(3):e37957

Challenges in Measuring What Matters to Patients With Diabetes. Comment on “Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review”

Challenges in Measuring What Matters to Patients With Diabetes. Comment on “Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review”

We appreciate the herculean effort undertaken to summarize all diabetes-related patient-reported outcome measures (PROMs). However, we have some concerns. First, despite the large amount of identified PROMs (N=238), there are still many PROMs missing [1]. In our systematic review of PROMs measuring health-related quality of life (HRQOL) in people with type 2 diabetes (currently under review), which was performed in the same time period and using the same databases, we identified 116 HRQOL PROMS.

Femke Rutters, Ellen Elsman, Lenka Groeneveld, Marlous Langendoen-Gort, Lidwine Mokkink, Caroline Terwee

J Med Internet Res 2022;24(3):e36876