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Using Social Media to Engage and Enroll Underrepresented Populations: Longitudinal Digital Health Research

Using Social Media to Engage and Enroll Underrepresented Populations: Longitudinal Digital Health Research

Participation in research studies by historically racial and ethnic marginalized populations is significantly lower compared to their White counterparts. This has resulted in the underrepresentation of these groups across research study disciplines [1-3]. The National Institutes of Health (NIH) defines underrepresented populations (URPs) as those with disproportionately low representation relative to their overall or disease-specific population [4].

Christiana Harry, Sarah Goodday, Carol Chapman, Emma Karlin, April Joy Damian, Alexa Brooks, Adrien Boch, Nelly Lugo, Rebecca McMillan, Jonell Tempero, Ella Swanson, Shannon Peabody, Diane McKenzie, Stephen Friend

JMIR Form Res 2025;9:e68093

Using Text Messaging Surveys in General Practice Research to Engage With People From Low-Income Groups: Multi-Methods Study

Using Text Messaging Surveys in General Practice Research to Engage With People From Low-Income Groups: Multi-Methods Study

Our approach did not capture participants from more marginalized groups due to constraints related to technology and human factors. We used 2 processes to explore the use of SMS text messages for data collection in general practice research (1) an SMS text message from the patient’s own general practice that contained an external link to an online survey and (2) a 2-way SMS survey that was sent from the research team to patients who agreed to be contacted.

Elizabeth Sturgiss, Jenny Advocat, Christopher Barton, Emma N Walker, Suzanne Nielsen, Annemarie Wright, Tina Lam, Nilakshi Gunatillaka, Symrin Oad, Christopher Wood

JMIR Mhealth Uhealth 2024;12:e55354

Perceptions of Wearable Health Tools Post the COVID-19 Emergency in Low-Income Latin Communities: Qualitative Study

Perceptions of Wearable Health Tools Post the COVID-19 Emergency in Low-Income Latin Communities: Qualitative Study

There is a critical need for wearables to overcome existing access and accuracy issues for these marginalized communities and to be developed directly with community members to ensure goal and value alignment. The development and design of current health wearables have predominantly been driven by the experiences of affluent communities.

Stefany Cruz, Claire Lu, Mara Ulloa, Alexander Redding, Josiah Hester, Maia Jacobs

JMIR Mhealth Uhealth 2024;12:e50826

Leveling the Research Playing Field: Decolonizing Global Health Research Through Web-Based Platforms

Leveling the Research Playing Field: Decolonizing Global Health Research Through Web-Based Platforms

By conducting the CIVIC Project through web-based platforms, we found that we were able to strengthen the diversity of participants, provide a space for more marginalized groups to speak up, and minimize logistical barriers to attendance. An important lesson learned from using web-based platforms is that leveraging local knowledge through these methods enriches the exploratory nature of the research and increases the chances of successful implementation.

Rajeev Seth, Baldeep K Dhaliwal, Emily Miller, Tyler Best, Alexis Sullivan, Betty Thankachen, Yawar Qaiyum, Anita Shet

J Med Internet Res 2023;25:e46897

Recasting Jung Through an Indigenist Approach to Deepen Shared Knowledges of Well-being and Healing on Australian Soils: Protocol for a Qualitative Landscape Research Study

Recasting Jung Through an Indigenist Approach to Deepen Shared Knowledges of Well-being and Healing on Australian Soils: Protocol for a Qualitative Landscape Research Study

Photovoice is a method of data collection often used in research with women, First Nations, and marginalized communities [63]. Similar studies found that Aboriginal Australian women saw alignment between photovoice methods and cultural customs for sharing knowledge [37]. This research will use photovoice methods to capture and record the symbols of the sand talk yarns.

Sophie Zaccone, Graham Jamieson, Clara V Murray, Mark J Lock, David Doyle

JMIR Res Protoc 2022;11(12):e36328