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Stigma of Dementia on Social Media During World Alzheimer’s Awareness Month: Thematic Analysis of Posts

Juanita-Dawne Bacsu, Jasmine Cassy Mah, Ali Akbar Jamali, Christine Conanan, Samantha Lautrup, Corinne Berger, Dylan Fiske, Sarah Fraser, Anila Virani, Florriann Fehr, Alison L Chasteen, Zahra Rahemi, Shirin Vellani, Melissa K Andrew, Allison Cammer, Katherine S McGilton, Rory Gowda-Sookochoff, Kate Nanson, Karl S Grewal, Raymond J Spiteri

JMIR Form Res 2025;9:e72775

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Navigating Awareness and Strategies to Support Dementia Advocacy on Social Media During World Alzheimer’s Month: Infodemiology Study

Juanita-Dawne Bacsu, Sarah Anne Fraser, Ali Akbar Jamali, Christine Conanan, Alison L Chasteen, Shirin Vellani, Rory Gowda-Sookochoff, Corinne Berger, Jasmine C Mah, Florriann Fehr, Anila Virani, Zahra Rahemi, Kate Nanson, Allison Cammer, Melissa K Andrew, Karl S Grewal, Katherine S McGilton, Samantha Lautrup, Raymond J Spiteri

JMIR Infodemiology 2024;4:e63464

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Perspectives on Technology Use in the Context of Caregiving for Persons With Dementia: Qualitative Interview Study

The codebook was then given to another investigator (RG-S), who coded the first 10 to 15 responses for each question as a pilot test of the codebook. The codebook was refined by KSG and RG-S following this pilot phase; memos were used to document any new codes or ideas about the data. Next, the coding of all responses was completed independently by 2 coders (KSG and RG-S), who subsequently met to resolve discrepancies. Another investigator (MEO) was available to resolve the remaining coding issues.

Karl S Grewal, Rory Gowda-Sookochoff, Shelley Peacock, Allison Cammer, Lachlan A McWilliams, Raymond J Spiteri, Kristen R Haase, Mary Harrison, Lorraine Holtslander, Rhoda MacRae, Joanne Michael, Shoshana Green, Megan E O'Connell

JMIR Form Res 2024;8:e63041

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Examining the Twitter Discourse on Dementia During Alzheimer’s Awareness Month in Canada: Infodemiology Study

Juanita-Dawne Bacsu, Allison Cammer, Soheila Ahmadi, Mehrnoosh Azizi, Karl S Grewal, Shoshana Green, Rory Gowda-Sookochoff, Corinne Berger, Sheida Knight, Raymond J Spiteri, Megan E O'Connell

JMIR Form Res 2022;6(10):e40049

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Examining the Impact of COVID-19 on People With Dementia From the Perspective of Family and Friends: Thematic Analysis of Tweets

Twitter research with sociodemographic and geographical components would provide more insight into COVID-19’s impact in relation to sociodemographic and geographical characteristics. However, statistics show that Twitter users are from different countries across the world, with a leading number of users (in the millions) in the United States (76.9), Japan (58.95), India (23.6), Brazil (19.05), Indonesia (18.45), and the United Kingdom (18.4) [36].

Juanita-Dawne R Bacsu, Megan E O'Connell, Allison Cammer, Soheila Ahmadi, Corinne Berger, Mehrnoosh Azizi, Rory Gowda-Sookochoff, Karl S Grewal, Shoshana Green, Sheida Knight, Raymond J Spiteri