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This paper is in the following e-collection/theme issue:

Early Results in Infodemiology and Infoveillance (170) Policy Paper (23) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (1776) mHealth for Data Collection and Research (1779) Kids' and Adolescents' Use of Technology (193) Shared Decision Making and Self-Advocacy (93) Patient Generated Health Data (26)

Published on in Vol 8 (2024)

This is a member publication of University of Cambridge (Jisc)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/50368, first published .
Diverse group participates in a virtual meeting on a computer screen.

Preferences on Governance Models for Mental Health Data: Qualitative Study With Young People

Preferences on Governance Models for Mental Health Data: Qualitative Study With Young People

Authors of this article:

Emma Grace Carey1 Author Orcid Image ;   Faith Oluwasemilore Adeyemi2 Author Orcid Image ;   Lakshmi Neelakantan3 Author Orcid Image ;   Blossom Fernandes4 Author Orcid Image ;   Mina Fazel4 Author Orcid Image ;   Tamsin Ford1 Author Orcid Image ;   The MindKind Consortium5 ;   Anne-Marie Burn1 Author Orcid Image
Article Authors Cited by (6) Tweetations (2) Metrics

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  1. Handley M, Abascal Miguel L, Thompson L, Velloza J. Bridging community-engaged research and implementation science methods to advance public health practice. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2025;68(7):797 View
  2. Rodriguez Duque S, Tal E, Beggs T, Gore G, Hanna M, Beedle N, Dimitropoulos G, Felsky D, Iyer S, Kozloff N, Rotenberg D, Varadi A, Hill S, Henderson J, Barbic S. Co-created data governance frameworks for youth mental healthcare: Values, principles, and implementation—A scoping review. DIGITAL HEALTH 2025;11 View
  3. Burn A, Stochl J, Anderson J, Baser A, Jones P, Ford T. Calibration, Validation and Utility of ARTEMIS‐A: A Web Application for Early Identification of Mental Health Difficulties in Secondary Schools. International Journal of Methods in Psychiatric Research 2026;35(3) View
  4. Murray E, Shaikh M, Verhulst S, Doshi H, Leapciuc R, Mamutalieva P, Tunga M. Who decides what and how data is reused? Lessons learned from youth engagement and co-design for responsible data reuse in services. Data & Policy 2026;8 View
  5. Burdge C, Burn A, Zhang L, Menon S, Kaminska K, Wallace-Hanlon S, Fischer M, Evans C, Fonagy P, Wiedemann A, Young J, Moore A, Anderson J, Kuo P. Perceptions, attitudes, and concerns of underrepresented groups regarding the use of big data in children and young people’s healthcare research – A systematic literature review. PLOS Digital Health 2026;5(10):e0001434 View

Conference Proceedings

  1. Chung H, Sun H, Li Y. Proceedings of the 24th ACM/IEEE Joint Conference on Digital Libraries. Provincial Libraries’ Data Governance in the Data Intelligence Era View