Published on in Vol 7 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/52454, first published .
Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study

Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study

Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study

Jessica Keim-Malpass   1 , APRN, PhD ;   Christopher Lunsford   2 , MD ;   Lisa C Letzkus   3 , APRN, PhD ;   Eleanore Scheer   4 , BS ;   Rupa S Valdez   4, 5 , PhD

1 Division of Pediatric Hematology-Oncology, Department of Pediatrics, University of Virginia School of Medicine, Charlottesville, VA, United States

2 Department of Physical Medicine and Rehabilitation, Duke University School of Medicine, Durham, NC, United States

3 Division of Developmental Pediatrics, Department of Pediatrics, University of Virginia School of Medicine, Charlottesville, VA, United States

4 Department of Systems and Information Engineering, University of Virginia School of Engineering and Applied Sciences, Charlottesville, VA, United States

5 Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, VA, United States

Corresponding Author:

  • Jessica Keim-Malpass, APRN, PhD
  • Division of Pediatric Hematology-Oncology
  • Department of Pediatrics
  • University of Virginia School of Medicine
  • P.O. Box 800386
  • Charlottesville, VA, 22901
  • United States
  • Phone: 1 4349245105
  • Fax: 1 4349821927
  • Email: jlk2t@virginia.edu