Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study
Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study
Jessica Keim-Malpass
1
, APRN, PhD ;
Christopher Lunsford
2
, MD ;
Lisa C Letzkus
3
, APRN, PhD ;
Eleanore Scheer
4
, BS ;
Rupa S Valdez
4, 5
, PhD
1
Division of Pediatric Hematology-Oncology, Department of Pediatrics, University of Virginia School of Medicine, Charlottesville, VA, United States
2
Department of Physical Medicine and Rehabilitation, Duke University School of Medicine, Durham, NC, United States
3
Division of Developmental Pediatrics, Department of Pediatrics, University of Virginia School of Medicine, Charlottesville, VA, United States
4
Department of Systems and Information Engineering, University of Virginia School of Engineering and Applied Sciences, Charlottesville, VA, United States
5
Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, VA, United States
Corresponding Author:
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Jessica Keim-Malpass, APRN, PhD
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Division of Pediatric Hematology-Oncology
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Department of Pediatrics
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University of Virginia School of Medicine
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P.O. Box 800386
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Charlottesville, VA, 22901
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United States
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Phone:
1 4349245105
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Fax: 1 4349821927
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Email: jlk2t@virginia.edu