A Patient-Centered Website (Within Reach) to Foster Informed Decision-making About Upper Extremity Vascularized Composite Allotransplantation: Development and Usability Study

Karen B Vanterpool   ¹ , MPH, PhD ;   Jessica Gacki-Smith   ² , MPH ;   Brianna Kuramitsu   ² , MSW ;   Max Downey   ¹ , BS ;   Michelle J Nordstrom   ³ , OTR/L, MS ;   Michelle Luken   ^{3, 4} , DSc, OTR/L ;   Tiffany Riggleman   ^{3, 4} , COTA/L, AAS ;   Shannon Fichter   ^{3, 4} , MS ;   Withney Altema   ^{3, 4} , MHS ;   James B Brucker   ⁵ , MS ;   Carisa M Cooney   ⁶ , MPH ;   Gregory Dumanian   ⁵ , MD ;   Sally Jensen   ⁵ , PhD ;   Macey Levan   ¹ , JD, PhD ;   Scott M Tintle   ⁷ , MD ;   Gerald Brandacher   ⁶ , MD ;   Elisa J Gordon   ^{8, 9} , MPH, PhD

¹ Center for Surgical and Transplant Applied Research (C-STAR), NYU Langone Transplant Institute, New York University Grossman School of Medicine Department of Surgery, New York, NY, United States

² Center for Health Services and Outcomes Research, Northwestern University Feinberg School of Medicine, Chicago, IL, United States

³ Uniformed Services University of the Health Sciences, Center for Rehabilitation Sciences Research, Walter Reed National Military Medical Center, Bethesda, MD, United States

⁴ Henry M Jackson Foundation, Bethesda, MD, United States

⁵ Department of Medical Social Sciences and Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, United States

⁶ Department of Plastic and Reconstructive Surgery, Johns Hopkins University, Baltimore, MD, United States

⁷ Department of Orthopaedic Surgery, Walter Reed National Military Medical Center, Bethesda, MD, United States

⁸ Department of Surgery, Vanderbilt University Medical Center, Nashville, TN, United States

⁹ Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, United States