This paper is in the following e-collection/theme issue:

Formative Evaluation of Non-Ehealth Innovations (160) Focus Groups and Qualitative Research for Human Factors Research (1060) Consumer & Patient Education and Shared-Decision Making (771) Participatory Medicine & E-Patients (836) Participatory Design and Participatory Research (368) User-centred Design Case Studies (652) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (923)

Published on in Vol 5, No 3 (2021): March

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/24302, first published .
Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study

Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study

Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study

Authors of this article:

Emily M Godfrey1 Author Orcid Image ;   Traci M Kazmerski2 Author Orcid Image ;   Georgia Brown3 Author Orcid Image ;   Erin K Thayer1 Author Orcid Image ;   Laura Mentch3 Author Orcid Image ;   Molly Pam3 Author Orcid Image ;   Morhaf Al Achkar1 Author Orcid Image
Article Authors Cited by (6) Tweetations (2) Metrics

Journals

  1. Barnea R, Tur‐Sinai A, Levtzion‐Korach O, Weiss Y, Tal O. Patient preferences and choices as a reflection of trust—A cluster analysis comparing postsurgical perceptions in a private and a public hospital. Health Expectations 2022;25(5):2340 View
  2. Godfrey E, Thayer E, Mentch L, Kazmerski T, Brown G, Pam M, Al Achkar M. Development and evaluation of a virtual patient-centered outcomes research training program for the cystic fibrosis community. Research Involvement and Engagement 2021;7(1) View
  3. Sreenivasulu H, Muppalla S, Vuppalapati S, Shokrolahi M, Reddy Pulliahgaru A. Hope in Every Breath: Navigating the Therapeutic Landscape of Cystic Fibrosis. Cureus 2023 View
  4. Mazurek H, Emeryk A, Janeczek K, Derom E, Kuźnar-Kamińska B, Grzywalski T, Biniakowski A, Szarzyński K, Pastusiak A, Kaminiarczyk-Pyzałka D, Botteldooren D, Hafke-Dys H, Kociński J. AI-facilitated home monitoring for cystic fibrosis exacerbations across pediatric and adult populations. Journal of Cystic Fibrosis 2025;24(2):390 View
  5. Granja-Dominguez A, Martin-Gomez C, Ortigoza-Escobar J, Rodriguez-Lopez R, Gonzalez-Bermudez L, Dantone S, Pavanello S, Blasco-Amaro J. A proposal to involve people living with rare and complex conditions in the development of clinical practice guidelines. Patient Education and Counseling 2025;135:108708 View
  6. Iroz C, Godfrey M, Early C, Dell B, Boyle A, Tallarico E, Reed J, Johnson J. A Qualitative Study to Improve How We Partner With Patients and Families in Healthcare Improvement Collaboratives. Health Expectations 2025;28(3) View