This paper is in the following e-collection/theme issue:

Formative Evaluation of Digital Health Interventions (2412) Mobile Health (mhealth) (2941) mHealth for Symptom and Disease Monitoring, Chronic Disease Management (1400) Design and Formative Evaluation of Mobile Apps (695) Connected Health Conference 2017 (1) Chronic Disease Self-Management in Childhood and Adolescence (140)

Published on in Vol 2, No 2 (2018): Jul-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9963, first published .
Improving Transitions of Care for Young Adults With Congenital Heart Disease: Mobile App Development Using Formative Research

Improving Transitions of Care for Young Adults With Congenital Heart Disease: Mobile App Development Using Formative Research

Improving Transitions of Care for Young Adults With Congenital Heart Disease: Mobile App Development Using Formative Research

Authors of this article:

Keila N Lopez1 Author Orcid Image ;   Michael O'Connor2 Author Orcid Image ;   Jason King2 Author Orcid Image ;   James Alexander2 Author Orcid Image ;   Melissa Challman1 Author Orcid Image ;   Donna K Lovick1 Author Orcid Image ;   Nicole Goodly1 Author Orcid Image ;   Amelia Smith2 Author Orcid Image ;   Elliott Fawcett2 Author Orcid Image ;   Courtney Mulligan1 Author Orcid Image ;   Debbe Thompson3 Author Orcid Image ;   Michael Fordis2 Author Orcid Image
Article Authors Cited by (22) Tweetations (3) Metrics

Journals

  1. Campagna B, Weatherley K, Shemesh E, Annunziato R. Adherence to Medication During Transition to Adult Services. Pediatric Drugs 2020;22(5):501 View
  2. Constantine A, Barradas-Pires A, Dimopoulos K. Modifiable risk factors in congenital heart disease: Education, transition, digital health and choice architecture. European Journal of Preventive Cardiology 2020;27(10):1074 View
  3. Low J, Manias E. Use of Technology-Based Tools to Support Adolescents and Young Adults With Chronic Disease: Systematic Review and Meta-Analysis. JMIR mHealth and uHealth 2019;7(7):e12042 View
  4. Ntiloudi D, Gatzoulis M, Arvanitaki A, Karvounis H, Giannakoulas G. Adult congenital heart disease: Looking back, moving forward. International Journal of Cardiology Congenital Heart Disease 2021;2:100076 View
  5. Calvo M, González R, Seijas N, Vela E, Hernández C, Batiste G, Miralles F, Roca J, Cano I, Jané R. Health Outcomes from Home Hospitalization: Multisource Predictive Modeling. Journal of Medical Internet Research 2020;22(10):e21367 View
  6. Harrison D, Gurvitz M, Yu S, Lowery R, Afton K, Yetman A, Cramer J, Rudd N, Cohen S, Gongwer R, Uzark K. Differences in perceptions of transition readiness between parents and teens with congenital heart disease: do parents and teens agree?. Cardiology in the Young 2021;31(6):957 View
  7. Salciccioli K, Salemi J, Broda C, Lopez K. Disparities in insurance coverage among hospitalized adult congenital heart disease patients before and after the Affordable Care Act. Birth Defects Research 2021;113(8):644 View
  8. Reekie J. Flying the nest: are we doing enough to achieve successful transition in young people with congenital heart disease?. Heart 2020;106(1):87 View
  9. John A, Jackson J, Moons P, Uzark K, Mackie A, Timmins S, Lopez K, Kovacs A, Gurvitz M. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. Journal of the American Heart Association 2022;11(7) View
  10. González-Colom R, Herranz C, Vela E, Monterde D, Contel J, Sisó-Almirall A, Piera-Jiménez J, Roca J, Cano I. Prevention of Unplanned Hospital Admissions in Multimorbid Patients Using Computational Modeling: Observational Retrospective Cohort Study. Journal of Medical Internet Research 2023;25:e40846 View
  11. Higashimoto T, Whitehead M, MacLeod E, Starin D, Regier D. Maple syrup urine disease decompensation misdiagnosed as a psychotic event. Molecular Genetics and Metabolism Reports 2022;32:100886 View
  12. Bassareo P, Chessa M, Di Salvo G, Walsh K, Mcmahon C. Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review. Children 2023;10(3):423 View
  13. Ricci P, Dimopoulos K, Bouchard M, Zhiya C, Castro Meira V, Pool D, Lambell M, Rafiq I, Kempny A, Heng E, Gatzoulis M, Haidu L, Constantine A. Transition to adult care of young people with congenital heart disease: impact of a service on knowledge and self-care skills and correlates of a successful transition. European Heart Journal - Quality of Care and Clinical Outcomes 2023 View
  14. Orpin J, Rodriguez A, Harrop D, Mills E, Campbell F, Martin-Kerry J, Turner J, Horsman J, Painter J, Julian M, Dimitri P, Howsley P, Swallow V. Supportive use of digital technologies during transition to adult healthcare for young people with long-term conditions, focusing on Type 1 diabetes mellitus: A scoping review. Journal of Child Health Care 2023 View
  15. Lee H, Lopez K. Ensuring the Success of Pediatric Cardiology Patients Through the Lifespan: Translating Current Transition Medicine Research into Programmatic Implementation. Current Pediatrics Reports 2023;11(4):193 View
  16. Han A, Gingrich J, Yaskina M, Rankin K, San Martin-Feeney D, Mackie A. Just TRAC it! Transitioning Responsibly to Adult Care Using Smart Phone Technology. Journal of Adolescent Health 2023;73(3):561 View
  17. Lopez K, Allen K, Baker-Smith C, Bravo-Jaimes K, Burns J, Cherestal B, Deen J, Hills B, Huang J, Lizano Santamaria R, Lodeiro C, Melo V, Moreno J, Nuñez Gallegos F, Onugha H, Pastor T, Wallace M, Ansah D. Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States. Journal of Cardiovascular Development and Disease 2024;11(2):36 View
  18. Lykkeberg B, Noergaard M, Bjerrum M. Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: A qualitative systematic review. Journal of Child Health Care 2024 View
  19. Harada M, Motoki H, Kuwahara K. Transitional Care for Adult Patients with Congenital Heart Disease: A Review. Internal Medicine 2024 View
  20. Haider S, Krishanthasan K, Olakorede I, Constantine A, Rafiq I, Dimopoulos K. Infective endocarditis: Awareness, knowledge gaps and behaviours amongst adults with congenital heart disease. International Journal of Cardiology Congenital Heart Disease 2024;18:100548 View
  21. Li Z, Lu F, Wu J, Bao R, Rao Y, Yang Y, Wang H. The usability and effectiveness of eHealth and mHealth interventions that support self-management and healthcare transition in adolescents and young adults with chronic disease: A systematic review (Preprint). Journal of Medical Internet Research 2024 View

Books/Policy Documents

  1. Habibi H. Guide for Advanced Nursing Care of the Adult with Congenital Heart Disease. View