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Giving a Voice to Patients With Smell Disorders Associated With COVID-19: Cross-Sectional Longitudinal Analysis Using Natural Language Processing of Self-Reports

Giving a Voice to Patients With Smell Disorders Associated With COVID-19: Cross-Sectional Longitudinal Analysis Using Natural Language Processing of Self-Reports

Hypothesis aim 1: Recovery from smell loss is often accompanied by parosmia and phantosmia and is considered a sign of olfactory mucosa regeneration [1]. Considering that some smell-related symptoms may remain in COVID-19 long-haulers, we predict that long-haulers will have a greater occurrence of parosmia and phantosmia in addition to other potential chemosensory dysfunctions compared with non–long-haulers based on their own description of their olfactory symptom progression in survey 2.

Nick S Menger, Arnaud Tognetti, Michael C Farruggia, Carla Mucignat, Surabhi Bhutani, Keiland W Cooper, Paloma Rohlfs Domínguez, Thomas Heinbockel, Vonnie D C Shields, Anna D'Errico, Veronica Pereda-Loth, Denis Pierron, Sachiko Koyama, Ilja Croijmans

JMIR Public Health Surveill 2024;10:e47064

Patients’ Perspectives on Qualitative Olfactory Dysfunction: Thematic Analysis of Social Media Posts

Patients’ Perspectives on Qualitative Olfactory Dysfunction: Thematic Analysis of Social Media Posts

The findings reported here are taken from posts made in the Ab Scent Parosmia and Phantosmia Support closed group on Facebook between June 12 and December 14, 2020 [16]. Demographic data are not available, as those joining the group do not provide this information. Conversation within this group is lively, and responses to polls and questions can generate over 300 comments in 24 hours.

Jane K Parker, Christine E Kelly, Barry C Smith, Aidan F Kirkwood, Claire Hopkins, Simon Gane

JMIR Form Res 2021;5(12):e29086