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However, pedigree data collection is so limited by familiarity and family communication of patients that it is hard to acquire in a clinical environment [12]. In addition, genetic information will change over time as the number of family members and confirmed relatives increases [12].
To address these issues, several web-based tools have been developed to collect and visualize pedigree data.
JMIR Form Res 2022;6(6):e36914
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