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Value Propositions for Digital Shared Medication Plans to Boost Patient–Health Care Professional Partnerships: Co-Design Study

Value Propositions for Digital Shared Medication Plans to Boost Patient–Health Care Professional Partnerships: Co-Design Study

Assuming joint responsibility could improve how different stakeholders learn from each other, leveraging their respective resources and building mutual trust in their collaborative partnership. The opportunity to participate could balance patient-health care professional power dynamics and increase patient autonomy: ...once that responsibility has been rebalanced and truly shared, I think that, well, trust should come as a matter of course.

Benjamin Bugnon, Francesca Bosisio, Alain Kaufmann, Pascal Bonnabry, Antoine Geissbuhler, Christian von Plessen

J Particip Med 2025;17:e50828

Influence of Partnership Relationships on Long-Term Neurological Rehabilitation in Germany: Protocol for a Qualitative Retrospective Study

Influence of Partnership Relationships on Long-Term Neurological Rehabilitation in Germany: Protocol for a Qualitative Retrospective Study

Individual processes take place within partnership dyads and domestic cohabitation. This is particularly relevant for Germany where 63% of people in need of care are cared for exclusively by relatives in a domestic setting. Nursing homes care for only 16% of people in need of long-term care in Germany [10]. In the partnership dyad between the person affected and the caregivers, dual roles arise as a spouse, patient, or caring relative [11].

Alexa von Bosse, Peter König, Eva Jansen

JMIR Res Protoc 2025;14:e63949

How a National Organization Works in Partnership With People Who Have Lived Experience in Mental Health Improvement Programs: Protocol for an Exploratory Case Study

How a National Organization Works in Partnership With People Who Have Lived Experience in Mental Health Improvement Programs: Protocol for an Exploratory Case Study

This research will use a case study approach to explore how partnership working is planned, conceptualized, and manifested in practice within the PD Improvement Programme. The aim of this study is to better understand how a national organization works in partnership with people who have lived experience with improvement programs in MH services, exploring people’s experiences of partnership working in a national organization.

Ciara Robertson, Carina Hibberd, Ashley Shepherd, Gordon Johnston

JMIR Res Protoc 2024;13:e51779

A Digital Health Initiative (COVIDsmart) for Remote Data Collection and Study of COVID-19’s Impact on the State of Virginia: Prospective Cohort Study

A Digital Health Initiative (COVIDsmart) for Remote Data Collection and Study of COVID-19’s Impact on the State of Virginia: Prospective Cohort Study

By forging a partnership, institutional strengths can be leveraged when mitigating the risks and challenges in recruiting participants for remote studies in health research, as poor recruitment could diminish the scientific value of a study. Digital health studies have enabled scientists to obtain data from various sources across large geographic areas and diverse populations.

Josh Schilling, Dave Klein, Marilyn M Bartholmae, Sepideh Shokouhi, Angela J Toepp, Amira A Roess, Joshua M Sill, Matvey V Karpov, Kathleen Maney, K Pearson Brown, Brian L Levy, Keith D Renshaw, Sunita Dodani, Praduman Jain

JMIR Form Res 2023;7:e37550

Evaluation of a Secure Messaging System in the Care of Children With Medical Complexity: Mixed Methods Study

Evaluation of a Secure Messaging System in the Care of Children With Medical Complexity: Mixed Methods Study

“Over time it became a partnership between the care team and [us]. There’s an invitation there to suggest treatments or alternatives. We [were] able to be taken seriously and to start this cooperation in the care of our daughter.” PC#8 “I feel heard, and more connected because of the [NP’sd] quick response. We feel that we’re genuinely being taken care of by her, and that she’s concerned, not just about my son and the medical side, but just our family’s wellbeing in general.

Camilla Parpia, Clara Moore, Madison Beatty, Susan Miranda, Sherri Adams, Jennifer Stinson, Arti Desai, Leah Bartlett, Erin Culbert, Eyal Cohen, Julia Orkin

JMIR Form Res 2023;7:e42881

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Bertha Pappenheim (also known as Anna O.) and Dr Josef Breuer, her physician and Freud’s mentor, discovered the therapeutic power of a collaborative partnership in the 1880s while listening to and learning from each other [2]. In the late 1950s, the mutual participation model was relegated to psychoanalysis and psychology.

Caridi Family, Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R Jadad

J Particip Med 2020;12(2):e17602

Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

To guide the choices of families potentially wary of engagement with the clinicians and research team and to further this objective, we developed a “partnership” model for families. The partnership model of interchange of information fosters long-term prospective communication of phenotype, genetic risk, and interpretation of research results. To that end, we developed three ways to engage family participants.

Sara Huston H Katsanis, Mollie A Minear, Azita Sadeghpour, Heidi Cope, Yezmin Perilla, Robert Cook-Deegan, Duke Task Force For Neonatal Genomics, Nicholas Katsanis, Erica E Davis, Misha Angrist

J Particip Med 2018;10(1):e2