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Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review
However, there is a lack of data regarding how parents interact with these groups, the content of the data shared in the groups, the impact of participation on the families, and the impact on parent-doctor interactions and relationships. This data could better inform professionals and researchers on the attitudes and dynamics of parental social media use and allow the development of ways to use social media to distribute educational resources around diagnostics, symptoms, equipment, and care needs.
J Med Internet Res 2025;27:e77087
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Breath-Focused Mindfulness and Compassion Training in Parent-Child Dyads: Pilot Intervention Study
Thus, we hypothesize that parent-child cointervention programs that promote joint participation may leverage coregulation to foster parent-child co–well-being. Of note, research also shows that in this context, families prefer nonpharmacological treatments for their children whenever effective behavioral solutions are available [28].
JMIR Form Res 2025;9:e69607
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Examination of Chronic Sorrow Among Parents of Children With Disabilities: Cross-Sectional Study
The participants who were eligible for this study fulfilled the following criteria: the mother, father, or primary caregiver of a child with a disability, the child had a confirmed medical diagnosis, the parent could speak and read Arabic, and parental age was above 18 years.
For this descriptive study, the significance level of α was set at 0.05 with a power of 0.8 to calculate the sample size and estimate power analysis. The sample size was estimated by G*Power software.
JMIR Pediatr Parent 2025;8:e65754
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These strategies generally included information about preparing children with ASD for physical activities (wearing sports clothes, social stories, and preview of activities and equipment), organizing the environment where physical activities will take place (safety, ventilation of the environment and sports pictures), including other members of the family in physical activities (parent and sibling participation), and reward is given.
JMIR Hum Factors 2025;12:e71119
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Parents were notified to complete 1 start-of-day survey, 3 signal-contingent examining mood and emotions, 1 end-of-day survey, and event surveys activated by the parent when their child ate or asked for food. Participants were able to schedule the morning and evening surveys to suit their typical routine. The full protocol and procedure are reported elsewhere [11].
Parents received a £100 (approximately US $126) shopping voucher if at least 8 “full” days of surveys were complete.
JMIR Form Res 2025;9:e66807
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A parent shared, “After the pediatric tuina, I felt he started eating meat...he even ate fish that he previously didn’t eat” [Participant 1]. Improvements in gastrointestinal function were reported, with one parent noting a remarkable change: “His stools have clearly improved, previously they were like small pellets, similar to Maltesers...during the massage period, his stools became much more normal” [Participant 50].
JMIR Pediatr Parent 2025;8:e65471
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Not only does affirmation from the general parent community positively impact TGD children directly, it also makes it easier for the parents of TGD children to adopt gender-affirming attitudes toward their children, when these prevail in the broader parent community [20,21]. Importantly, a parent’s journey toward acceptance and support of their TGD child begins with them as a member of the general parent community [22].
JMIR Public Health Surveill 2025;11:e66496
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All participants provided informed consent (some adolescents provided assent with their parent or guardian providing consent, while others consented directly) before participating in the study. Initial consent discussions were conducted through Zoom videoconferencing software (Zoom Video Communications) or telephone to explain the study objectives and address participants’ questions.
JMIR Diabetes 2025;10:e64267
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Due to the child’s significant needs, daycare availability may be limited, leading to a parent needing to stay at home [2]. Comparative research suggests that parents of children with ASD spend more time providing care for their children at home than those of children without special health care needs [3]. There is strong evidence suggesting that having a child with ASD in the household adversely affects the employment status of the parents [4,5].
JMIR Pediatr Parent 2024;7:e59696
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Characteristics and Popularity of Videos of Abusive Head Trauma Prevention: Systematic Appraisal
The fourth section related to AHT information delivered by the videos, including the risk factors for AHT related to the infant (male sex and disability) [55] and the parents (low socioeconomic level [56], parental vulnerability [2], and poor parent-infant bonding [57]), symptoms and medical consequences of AHT (temporary or long term), characterization of shaking as an abuse, and its penal consequences.
J Med Internet Res 2024;26:e60530
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