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Development of a Mobile App to Support Head and Neck Cancer Caregiving: Mixed Methods Study

Development of a Mobile App to Support Head and Neck Cancer Caregiving: Mixed Methods Study

In the 6 months following treatment completion, dietitians, survivors, and caregivers perceived that the majority of nutritional concerns assessed were important to caregiving (Figure 1). The caregiving concerns rated most important (ie, very or extremely) by dietitians included weight maintenance (n=107, 92%), feeding tube management (n=103, 89%), caregiver distress about nutrition (n=103, 89%), and swallowing (n=102, 88%).

Katherine Sterba, Evan Graboyes, Jessica Burris, Megan Scallion, Hannah Kinder, Jama Olsen, Benjamin Toll, Kent Armeson, Terry Day, Bhishamjit Chera, Kenneth Ruggiero

JMIR Cancer 2025;11:e66471

Stress and Hypertension Among African American Female Family Caregivers of Persons Living With Alzheimer Disease and Related Dementias: Protocol for a Pilot Internet-Based Randomized Controlled Trial

Stress and Hypertension Among African American Female Family Caregivers of Persons Living With Alzheimer Disease and Related Dementias: Protocol for a Pilot Internet-Based Randomized Controlled Trial

The prevalence of ADRD is higher among African American individuals, leading to a disproportionately more significant share of the family caregiving burden. Approximately one-third of these caregivers of individuals living with dementia acknowledge postponing or neglecting their health due to their caregiving role [1]. Given African American individuals’ heightened risk of ADRD, particularly vascular and mixed dementia, this problem disproportionately affects African American family caregivers [1].

Kathy D Wright, Ingrid K Richards Adams, Nathan P Helsabeck, Karen M Rose, Karen O Moss, Donya Nemati, Navia Palmer, Bohyun Kim, Sunita Pokhrel Bhattarai, Christopher Nguyen, Daniel Addison, Maryanna D Klatt

JMIR Res Protoc 2025;14:e66975

Developing Assessments for Key Stakeholders in Pediatric Congenital Heart Disease: Qualitative Pilot Study to Inform Designing of a Medical Education Toy

Developing Assessments for Key Stakeholders in Pediatric Congenital Heart Disease: Qualitative Pilot Study to Inform Designing of a Medical Education Toy

They must interpret medical jargon, simplify it for their child, and act as intermediaries with health care providers, all while managing the emotional strain of caregiving and the cognitive load of understanding complex medical information. This burden can increase stress, reduce caregiving effectiveness, and impact family well-being. Low parental health literacy further compounds these challenges, as it is linked to medical errors and poorer health outcomes for children [17-24].

Neda Barbazi, Ji Youn Shin, Gurumurthy Hiremath, Carlye Anne Lauff

JMIR Form Res 2025;9:e63818

The PDC30 Chatbot—Development of a Psychoeducational Resource on Dementia Caregiving Among Family Caregivers: Mixed Methods Acceptability Study

The PDC30 Chatbot—Development of a Psychoeducational Resource on Dementia Caregiving Among Family Caregivers: Mixed Methods Acceptability Study

Furthermore, through remarkably improved emotional and cognitive support by virtue of generative AI technology, the chatbot is capable of delivering empathetic responses and practical caregiving strategies without requiring constant caregiver input. This makes it a more autonomous and complete tool for addressing the emotional, cognitive, and practical demands of dementia caregiving. In the following, we describe in detail the construction of the PDC30 Chatbot and its acceptability from a user perspective.

Sheung-Tak Cheng, Peter H F Ng

JMIR Aging 2025;8:e63715

Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Surprisingly, caregiving costs are frequently not included in pediatric economic models despite the central nature of direct caregiving activities to children’s health [10,11]. A 2023 systematic review assessing the inclusion of family spillover impacts in pediatric cost-utility analysis found that out of 878 pediatric cost-utility analyses, only 35 included any family spillover effects within the model development [11].

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024;16:e60666

Sentiment Dynamics Among Informal Caregivers in Web-Based Alzheimer Communities: Systematic Analysis of Emotional Support and Interaction Patterns

Sentiment Dynamics Among Informal Caregivers in Web-Based Alzheimer Communities: Systematic Analysis of Emotional Support and Interaction Patterns

We focused our analysis on a specific subset of forums that are dedicated to ADRD caregivers who share caregiving experiences, seek assistance, and engage in caregiving discussions. To ensure relevance and coherence, we conducted a preliminary selection process, manually reviewing the top 20 most viewed or commented posts within each relevant forum to assess their alignment with caregiving topics.

Congning Ni, Qingyuan Song, Qingxia Chen, Lijun Song, Patricia Commiskey, Lauren Stratton, Bradley Malin, Zhijun Yin

JMIR Aging 2024;7:e60050

Remote Passive Sensing of Older Adults’ Activities and Function: User-Centered Design Considerations for Behavioral Interventions Conducted in the Home Setting

Remote Passive Sensing of Older Adults’ Activities and Function: User-Centered Design Considerations for Behavioral Interventions Conducted in the Home Setting

Likewise, stress from caregiving for older adults with chronic health conditions impacts everyday routines and behaviors such as sleep and physical activity. Detecting and differentiating these subtle changes is ideally pursued in the home setting, where older adults perform their regular daily routines and demonstrate their functional capacity in ecologically valid ways.

Lyndsey M Miller, Jeffrey Kaye, Allison Lindauer, Wan-Tai M Au-Yeung, Nathaniel K Rodrigues, Sara J Czaja

J Med Internet Res 2024;26:e54709

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial

The experiment also aims to assess the effectiveness of the web-based support program, and to explore its impact on the caregiving burden and caregiving abilities of dementia caregivers, compared with dementia caregivers who receive routine caregiving interventions after discharge. The primary outcomes of this study consisted of evaluating the severity of neuropsychiatric symptoms in patients with dementia, assessing the burden on caregivers, and gauging the capability of caregivers.

Yanhong Xie, Shanshan Shen, Caixia Liu, Huilan Guan, Jingmei Zhang, Wanqi Yu, Hong Hong

JMIR Aging 2024;7:e50847