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Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study

Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study

Decentralized biobanking system design—nonfungible token (NFT) framework and software applications uniting patients, specimens, and scientists. This system diagram illustrates key entities of biobanking connected via a specimen supply chain (red arrow) yet presently lacking a unified platform for collaboration.

William Sanchez, Ananya Dewan, Eve Budd, M Eifler, Robert C Miller, Jeffery Kahn, Mario Macis, Marielle Gross

JMIR Bioinform Biotech 2025;6:e70463

Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study

Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study

Biobanking ecosystem: biospecimen supply chain from clinical by-products to institutionalized assets. In the current biobanking paradigm, personally relevant insights and extra tissue are often wasted, representing lost opportunity to advance patient care and maximize value from donated biospecimens. CRO: contract research organization.

Ananya Dewan, M Eifler, Amelia Hood, William Sanchez, Marielle Gross

JMIR Hum Factors 2025;12:e59485

An Integrated, Scalable, Electronic Video Consent Process to Power Precision Health Research: Large, Population-Based, Cohort Implementation and Scalability Study

An Integrated, Scalable, Electronic Video Consent Process to Power Precision Health Research: Large, Population-Based, Cohort Implementation and Scalability Study

The 2017 revision to the common rule includes a new category of regulatory broad consent that provides more flexibility for researchers to consent participants for the storage, biobanking, and secondary research use of identifiable information or biospecimens [4]. Further, many advocates and ethicists have articulated an obligation to communicate that remnant tissue may be used for research and that researchers should proactively obtain informed consent [7,8].

Clara Lajonchere, Arash Naeim, Sarah Dry, Neil Wenger, David Elashoff, Sitaram Vangala, Antonia Petruse, Maryam Ariannejad, Clara Magyar, Liliana Johansen, Gabriela Werre, Maxwell Kroloff, Daniel Geschwind

J Med Internet Res 2021;23(12):e31121

Electronic Video Consent to Power Precision Health Research: A Pilot Cohort Study

Electronic Video Consent to Power Precision Health Research: A Pilot Cohort Study

Engage UC, an NIH-funded study, examined biobanking in the University of California system with community constituents to better define the innovative and accessible consent materials needed as part of a scalable institutional biobanking program in support of PM [4,11].

Arash Naeim, Sarah Dry, David Elashoff, Zhuoer Xie, Antonia Petruse, Clara Magyar, Liliana Johansen, Gabriela Werre, Clara Lajonchere, Neil Wenger

JMIR Form Res 2021;5(9):e29123

Côte d’Ivoire Dual Burden of Disease (CoDuBu): Study Protocol to Investigate the Co-occurrence of Chronic Infections and Noncommunicable Diseases in Rural Settings of Epidemiological Transition

Côte d’Ivoire Dual Burden of Disease (CoDuBu): Study Protocol to Investigate the Co-occurrence of Chronic Infections and Noncommunicable Diseases in Rural Settings of Epidemiological Transition

At the IPCI and Swiss TPH biobanking facilities, freezer temperatures are supervised and recorded continuously by two independent temperature control systems that assure biospecimen safety. Access to freezers and biospecimens are restricted to key study personnel. Access to biospecimens for biomarker analyses in the context of a project will need approval from the project leaders.

Ikenna C C. Eze, Clémence Esse, Fidèle K Bassa, Siaka Koné, Felix Acka, Loukou Yao, Medea Imboden, Fabienne N Jaeger, Christian Schindler, Mireille Dosso, Véronique Laubhouet-Koffi, Dinard Kouassi, Eliézer K N’Goran, Jürg Utzinger, Bassirou Bonfoh, Nicole Probst-Hensch

JMIR Res Protoc 2017;6(10):e210

Facebook Advertising Across an Engagement Spectrum: A Case Example for Public Health Communication

Facebook Advertising Across an Engagement Spectrum: A Case Example for Public Health Communication

Facebook users could engage with Web content, videos, and photo albums that included descriptions and public opinions of biobanking and newborn screening. Website click ads led to 15,958 clicks through to our website, at a cost of US $0.35 per website click. The website click ad that incurred CPM had a much lower click-through rate (CTR) than the same ad that incurred CPC: 0.13%, compared with 3.77%.

Tevah Platt, Jodyn Platt, Daniel B. Thiel, Sharon L. R. Kardia

JMIR Public Health Surveill 2016;2(1):e27