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A New Questionnaire to Assess Respiratory Symptoms (The Respiratory Symptom Experience Scale): Quantitative Psychometric Assessment and Validation Study

A New Questionnaire to Assess Respiratory Symptoms (The Respiratory Symptom Experience Scale): Quantitative Psychometric Assessment and Validation Study

The exclusion criteria were as follows: have a first-degree relative who is a current or former employee of the tobacco or e-cigarette industry, have a household member in litigation with a tobacco or e-cigarette company, and have participated in marketing research pertaining to tobacco or e-cigarettes in the past month. The study was approved by the Sterling institutional review board (protocol 8613, approved January 7, 2021).

Saul Shiffman, Stacey A McCaffrey, Michael J Hannon, Nicholas I Goldenson, Ryan A Black

JMIR Form Res 2023;7:e44036

A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items

A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items

As a convenience sample of chronic online patients, this group is representative of digital health patients, but caution should be taken in generalizing these findings to other groups. On request for ethical independent review board, this research was exempted from further ethical review by the New England Independent Review Board as a minimal risk study (WO 1-2559-1). A literature search was conducted to guide the development of a preliminary conceptual model and item generation.

Paul Wicks, Stacey McCaffrey, Kim Goodwin, Ryan Black, Michael Hoole, James Heywood

J Med Internet Res 2019;21(1):e12075

Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Of the 21 participants, 16 (76%) reported a diagnosis of MF, 3 (14%) reported a diagnosis of SS, and 2 (10%) did not report a diagnosis. The average disease length was 10 (SD 9.50) years, with a range of Based on the qualitative analysis, 43 of the 60 codes developed from the coding scheme reached agreement of a Cohen kappa at or above 0.65. Saturation was reached after 15 patients, suggesting an adequate sample size.

Stacey McCaffrey, Ryan A Black, Mitchell Nagao, Marjan Sepassi, Gaurav Sharma, Susan Thornton, Youn H Kim, Julia Braverman

J Med Internet Res 2019;21(1):e11302