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Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study

Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study

High-level schematic of the work program to develop the My Eye Site platform. GDPR: General Data Protection Regulation; SAR: subject access request. An enriched picture of future objectives and uses for the technology was also established based on use-case scenarios (Textbox 2; Figures 3 and 4). The My Eye Site use case is outlined in Figures 3 and 4.

Rose M Gilbert, Dayyanah Sumodhee, Nikolas Pontikos, Catherine Hollyhead, Angus Patrick, Samuel Scarles, Sabrina Van Der Smissen, Rodrigo M Young, Nick Nettleton, Andrew R Webster, Jocelyn Cammack

JMIR Form Res 2022;6(1):e21341