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Comprised of both information-gathering and use of services, health-seeking behaviors have been studied in the context of coping among patients with cancer and other serious illnesses [7], and to a lesser extent, as a marker of patient activation [8,9]. A systematic review of literature on health-seeking behavior concluded that routine assessments of patients’ health-seeking behaviors and attitudes are warranted as a marker of patient activation and healthy coping with illness [4].
JMIR Diabetes 2024;9:e63434
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Responses to each of the 3 daily questions were on a 5-point scale, with higher scores corresponding to higher levels of the named construct. Resulting scores were on a T metric (mean 50, SD 10) relative to a reference population (either other caregivers, ie, for caregiver strain, or the US general population for PROMIS Anxiety and PROMIS Depression) [41].
JMIR Form Res 2023;7:e43099
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Care partners from 3 distinct groups will be examined: care partners for persons with a chronic condition that was caused by a traumatic event (ie, spinal cord injury [SCI]), care partners for persons with a progressive, fatal neurodegenerative disease (ie, Huntington disease [HD]), and care partners for persons with an episodic cancer condition that requires intense, prolonged inpatient and outpatient treatment (persons with allogeneic hematopoietic cell transplantation [HCT]).
JMIR Res Protoc 2021;10(12):e32842
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