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Web-Based Digital Storytelling for Endometriosis and Pain: Qualitative Pilot Study

Web-Based Digital Storytelling for Endometriosis and Pain: Qualitative Pilot Study

We adopted a community-based participatory research approach incorporating the tenets of patient-oriented research and integrated knowledge translation, defined by a mutually respectful partnership between researchers and communities [21,22]. We defined a community in this context by disease membership.

A Fuchsia Howard, Heather Noga, Gurkiran Parmar, Lan Kennedy, Sarah Aragones, Roop Bassra, Lauren Gelfer, Edurne Lopez de Arbina, Jessica Sutherland, Catherine Allaire, John L Oliffe, Leanne M Currie, Holly Yager, Paul J Yong

JMIR Form Res 2023;7:e37549

Developing an Educational Website for Women With Endometriosis-Associated Dyspareunia: Usability and Stigma Analysis

Developing an Educational Website for Women With Endometriosis-Associated Dyspareunia: Usability and Stigma Analysis

The website was developed by a multidisciplinary team of scientists, health care professionals, patient partners, and community organizations in close collaboration with a web design company as part of an end-of-grant knowledge translation project.

Abdul-Fatawu Abdulai, A Fuchsia Howard, Paul J Yong, Heather Noga, Gurkiran Parmar, Leanne M Currie

JMIR Hum Factors 2022;9(1):e31317