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Both questions were adapted from a Dutch survey designed by van Uden-Kraan et al [34] in collaboration with medical experts and patient representatives. Survey respondents were allowed to provide multiple reasons for engaging with web-based forums as well as additional reasons in an open text field. Respondents who did not have contact with other patients on specific web-based patient forums were asked for their reasons for not doing so.
JMIR Form Res 2022;6(12):e36755
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