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Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study

Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study

Thus, to provide a starting point for mitigating bias for the use of patient-generated health data from social media in the future, we conducted a survey to investigate sample bias in social media use among patients with GIST in the Netherlands relative to the survey sample. GIST is a rare form of cancer, which often has a long palliative care trajectory in which patients are treated with chronic, oral medication (tyrosine kinase inhibitors [TKIs]) for many years. If caught early, GIST can be cured.

Anne Dirkson, Dide den Hollander, Suzan Verberne, Ingrid Desar, Olga Husson, Winette T A van der Graaf, Astrid Oosten, Anna K L Reyners, Neeltje Steeghs, Wouter van Loon, Gerard van Oortmerssen, Hans Gelderblom, Wessel Kraaij

JMIR Form Res 2022;6(12):e36755