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Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study

Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study

A more comprehensive overview of the literature on patient communication forums for patients with gastrointestinal stromal tumor (GIST) on broader topics than bias can be found in the recent work of den Hollander et al [31] and our own prior work [32]. Other studies addressed another bias that is relevant when mining social media for patient-generated health data: so-called activity bias [33] or the fact that only some users actively post messages.

Anne Dirkson, Dide den Hollander, Suzan Verberne, Ingrid Desar, Olga Husson, Winette T A van der Graaf, Astrid Oosten, Anna K L Reyners, Neeltje Steeghs, Wouter van Loon, Gerard van Oortmerssen, Hans Gelderblom, Wessel Kraaij

JMIR Form Res 2022;6(12):e36755