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Improving Recruitment Through Social Media and Web-Based Advertising to Evaluate the Genetic Risk and Long-Term Complications in Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis: Community-Based Survey

Improving Recruitment Through Social Media and Web-Based Advertising to Evaluate the Genetic Risk and Long-Term Complications in Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis: Community-Based Survey

The initial age spread of participants enrolled resembled a bell curve with the highest density of enrollment (n=29, 23%) being between 55 to 64 years. Most enrolled participants (n=100, 80%) were aged 25‐64 years. Following ad campaigns, 131 (21.5%) responses were received, with 16 (17.4%) identifying as male. Notably, more even distribution was seen from 18 through 74 years, with an average of 14.3 (15%) enrolled into each age category.

Elizabeth A Williams, Michelle D Martin-Pozo, Alexis H Yu, Krystyna Daniels, Madeline Marks, April O'Connor, Elizabeth J Phillips

J Med Internet Res 2025;27:e63712