Search Articles

View query in Help articles search

Search Results (1 to 10 of 11 Results)

Download search results: CSV END BibTex RIS


ENABLE—App-Based Digital Capture and Intervention of Patient-Reported Quality of Life, Adverse Events, and Treatment Satisfaction in Breast Cancer: Protocol for a Randomized Controlled Trial

ENABLE—App-Based Digital Capture and Intervention of Patient-Reported Quality of Life, Adverse Events, and Treatment Satisfaction in Breast Cancer: Protocol for a Randomized Controlled Trial

One approach to assess these needs is to evaluate the patient’s health-related quality of life (HRQo L) during therapy. They can be measured with the help of questionnaires. A distinction is made between disease-specific and generic (cross-disease) quality of life (Qo L) questionnaires [7]. The gold standard for recording HRQo L is patient-reported outcomes (PROs) [8].

Thomas M Deutsch, Léa L Volmer, Manuel Feisst, Laura Bodenbeck, Kathrin Hassdenteufel, Lara Tretschock, Christiane Breit, Stefan Stefanovic, Armin Bauer, Carolin Anders, Lina Weinert, Tobias Engler, Andreas D Hartkopf, Nico Pfeifer, Pascal Escher, Marc Mausch, Oliver Heinze, Marc Suetterlin, Sara Y Brucker, Andreas Schneeweiss, Markus Wallwiener

JMIR Res Protoc 2025;14:e69855

Exploring the Perspectives of Patients Living With Lupus: Retrospective Social Listening Study

Exploring the Perspectives of Patients Living With Lupus: Retrospective Social Listening Study

To investigate the HRQo L of patients, the frequency of mentions and the perceived importance of issues related to HRQo L facets were analyzed. Social networking communities discussed several aspects of HRQo L, as evidenced by 2199 patient mentions and 2138 posts accounting to 37.9% (2138/5636) of all posts analyzed in this study. These posts on HRQo L by patients with SLE contained descriptions of how they perceived the most burdensome symptoms and the impact on their daily lives.

Erica Spies, Thomas Andreu, Matthias Hartung, Josephine Park, Paul Kamudoni

JMIR Form Res 2024;8:e52768

The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study

The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study

Finally, our exploratory aim was to examine whether four variables, (1) previous HRQOL measures, (2) number of weeks in study, (3) step count, and (4) minutes of sleep, can modify the effectiveness of personalized JITAIs on HRQOL outcomes. Findings from this exploratory analysis can inform the future design of personalized JITAIs.

Jitao Wang, Zhenke Wu, Sung Won Choi, Srijan Sen, Xinghui Yan, Jennifer A Miner, Angelle M Sander, Angela K Lyden, Jonathan P Troost, Noelle E Carlozzi

JMIR Form Res 2023;7:e43099

Effects of Semisupervised Exercise Training on Health Outcomes in People With Lung or Head and Neck Cancer: Protocol for a Randomized Controlled Trial

Effects of Semisupervised Exercise Training on Health Outcomes in People With Lung or Head and Neck Cancer: Protocol for a Randomized Controlled Trial

Although having positive effects, these treatments also have side effects, such as fatigue [5,6] and a decrease in functional exercise capacity [7], muscle mass [8], and muscle strength [8,9], which will ultimately affect physical activity and health-related quality of life (HRQo L) [10,11]. Therefore, complementary interventions that could minimize these side effects are needed [7]. Studies have demonstrated that exercise promotes benefits to this population [7].

Isis Grigoletto, Vinicius Cavalheri, Luis Alberto Gobbo, Karina Pozo, Enio Rodrigues Maia Filho, Diogo Gonçalves Ribeiro, Nara Ielo, Fabiano Francisco De Lima, Ercy Mara Cipulo Ramos

JMIR Res Protoc 2023;12:e43547

Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study

Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study

People living with rheumatoid arthritis (RA), a long-term progressive autoimmune disease, experience a significantly reduced health-related quality of life (HRQo L), which can be characterized as the impact a condition has on physical, emotional, and social well-being. People with RA have poorer HRQo L compared with patients with other rheumatic diseases [1] and the general population [2]. There are likely numerous causes for poor HRQo L.

John McBeth, William G Dixon, Susan Mary Moore, Bruce Hellman, Ben James, Simon D Kyle, Mark Lunt, Lis Cordingley, Belay Birlie Yimer, Katie L Druce

J Med Internet Res 2022;24(4):e32825

An Electronic Patient-Reported Outcome Tool for the FACT-B (Functional Assessment of Cancer Therapy-Breast) Questionnaire for Measuring the Health-Related Quality of Life in Patients With Breast Cancer: Reliability Study

An Electronic Patient-Reported Outcome Tool for the FACT-B (Functional Assessment of Cancer Therapy-Breast) Questionnaire for Measuring the Health-Related Quality of Life in Patients With Breast Cancer: Reliability Study

PROs comprise various aspects of the subjectively perceived state of health from the patients’ point of view such as HRQo L, satisfaction with care, and drug adherence [9,15,16]. With regard to the therapy setting, monitoring HRQo L and the occurrence of symptoms appears to be of particular relevance, primarily during therapy, but also as a long-term follow-up for improving and supporting patients´ well-being [17-20].

Lina Maria Matthies, Florin-Andrei Taran, Lucia Keilmann, Andreas Schneeweiss, Elisabeth Simoes, Andreas D Hartkopf, Alexander N Sokolov, Christina B Walter, Nina Sickenberger, Stephanie Wallwiener, Manuel Feisst, Paul Gass, Michael P Lux, Florian Schuetz, Peter A Fasching, Christof Sohn, Sara Y Brucker, Joachim Graf, Markus Wallwiener

J Med Internet Res 2019;21(1):e10004

Cocreated Smartphone App to Improve the Quality of Life of Adolescents and Young Adults with Cancer (Kræftværket): Protocol for a Quantitative and Qualitative Evaluation

Cocreated Smartphone App to Improve the Quality of Life of Adolescents and Young Adults with Cancer (Kræftværket): Protocol for a Quantitative and Qualitative Evaluation

AYAs with cancer report a decrease in health-related quality of life (HRQo L), regardless of other demographic factors such as gender, age, or ethnicity [6,7] and struggle with long-term complications in the physical, psychosocial, economic, and academic domains as a consequence of their disease and recovery process [8-10].

Abbey Marie Elsbernd, Maiken Hjerming, Camilla Visler, Lisa Lyngsie Hjalgrim, Carsten Utoft Niemann, Kirsten Boisen, Helle Pappot

JMIR Res Protoc 2018;7(5):e10098