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The Effect of the General Data Protection Regulation on Medical Research

The Effect of the General Data Protection Regulation on Medical Research

There are no clear indications that there are no future plans to use NHS patient data for research.Dame Fiona Caldicott reviewed arrangements because of the widespread concerns related to consent [22], and her report led to the cancellation of the Care.data

John Mark Michael Rumbold, Barbara Pierscionek

J Med Internet Res 2017;19(2):e47


Does a Pandemic Preempt Participatory Medicine?

Does a Pandemic Preempt Participatory Medicine?

As Fiona Lowenstein, founder of one such group, wrote in Vox, “As we wait for institutions to catch up with a new and fast-moving virus, parallel forms of information-sharing via communities, personal stories, and support groups…have become crucial” [11].Now

Michael Louis Millenson

J Participat Med 2020;12(4):e23860


Appropriation of Mobile Health for Diabetes Self-Management: Lessons From Two Qualitative Studies

Appropriation of Mobile Health for Diabetes Self-Management: Lessons From Two Qualitative Studies

Some respondents also participated in discussions on the Web on costs, insurance, or specific self-management apps (Conrad, aged 31 years; Fiona, aged 29 years; Olga, aged 52 years).

Constanze Rossmann, Claudia Riesmeyer, Nicola Brew-Sam, Veronika Karnowski, Sven Joeckel, Arul Chib, Rich Ling

JMIR Diabetes 2019;4(1):e10271


Defining the Supportive Care Needs and Psychological Morbidity of Patients With Functioning Versus Nonfunctioning Neuroendocrine Tumors: Protocol for a Phase 1 Trial of a Nurse-Led Online and Phone-Based Intervention

Defining the Supportive Care Needs and Psychological Morbidity of Patients With Functioning Versus Nonfunctioning Neuroendocrine Tumors: Protocol for a Phase 1 Trial of a Nurse-Led Online and Phone-Based Intervention

MacCallum Cancer Centre in Melbourne, Victoria, with additional recruitment sites at the Royal North Shore Hospital and Northern Cancer Institute (New South Wales), the Lyell McEwin Hospital (South Australia), Royal Brisbane Hospital (Queensland), and the Fiona

Lisa Guccione, Karla Gough, Allison Drosdowsky, Krista Fisher, Timothy Price, Nick Pavlakis, Mustafa Khasraw, David Wyld, David Ransom, Grace Kong, Megan Rogers, Simone Leyden, John Leyden, Michael Michael, Penelope Schofield

JMIR Res Protoc 2019;8(12):e14361