TY  - JOUR
AU  - Caparso, Cinzia
AU  - Ozkan, Gwynne
AU  - Kluge, Maxwell
AU  - Salim, Humza
AU  - Khaghany, Aidan
AU  - Blok, Amanda
AU  - Choi, Sung Won
PY  - 2023
DA  - 2023/8/31
TI  - Mobile Technology to Monitor and Support Health and Well-Being: Qualitative Study of Perspectives and Design Suggestions From Patients Undergoing Hematopoietic Cell Transplantation
JO  - JMIR Form Res
SP  - e49806
VL  - 7
KW  - hematopoietic stem cell transplantation
KW  - bone marrow
KW  - surgery
KW  - surgical
KW  - recovery
KW  - mobile apps
KW  - mHealth
KW  - mobile health
KW  - app
KW  - apps
KW  - qualitative research
KW  - qualitative
KW  - experience
KW  - experiences
KW  - perception
KW  - perceptions
KW  - stem cell
KW  - stem cells
KW  - transplant
KW  - transplantation
KW  - transplants
KW  - hematopoietic
KW  - positive psychology
KW  - psychology
AB  - Background: In the United States, hematopoietic stem cell transplant (HCT) surpasses 22,000 procedures annually. Due to the demanding and time-intensive process of an HCT, patients and family care partners face unique challenges involving their health and well-being. Positive psychology interventions (PPIs) may offer potential solutions to help boost health and well-being. Objective: This study aimed to explore and understand patients’ experiences and perceptions about the use of the Roadmap 2.0 app, specifically its PPI features, during the acute phase of HCT. Methods: From an ongoing randomized controlled trial, HCT patients (n=17) were recruited to participate in semistructured qualitative interviews between October 2022 and January 2023 within a large academic medical center in the Midwestern states. Using a qualitative descriptive approach, interviews were conducted in person or via Zoom. The data were analyzed through constant comparative analysis. The Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines were followed. Results: The majority of the participants reported Roadmap 2.0 as easy to use and enjoyed the ability to track their health data (eg, steps, mood, sleep; 9/17). Regarding the use of PPIs during the acute phase of treatment, 88% of the participants reported interest in participating in PPIs, specifically the Pleasant Activity Scheduling (11/17) followed by Gratitude Journaling (7/17) activities. Additionally, participants provided recommendations on adapting Roadmap 2.0. The major recommendations were (1) “Working Together: Need for Dyadic Involvement,” (2) “Connectivity with Other Patients,” and (3) “Gap in Nutritional Support.” Participants (10/17) expressed the importance of caregiver involvement in activities beyond treatment-related management for maintaining healthy patient-caregiver dyadic relationships. They also expressed their desire for connectivity with other patients undergoing HCT, primarily for comparing experiences and discussing topics such as symptom management (8/17). Lastly, participants identified a gap in nutritional support during the HCT process and expressed interest in an intervention that could promote healthy eating through education and notification reminders (9/17). Conclusions: Participants openly expressed their eagerness to participate in research studies that foster connection and positive relationships with their caregivers as well as with other HCT patients. They emphasized the significance of having access to nutritional support or guidance and highlighted the potential benefits of using mobile technology to enhance these collective efforts. Trial Registration: ClinicalTrials.gov NCT04094844; https://clinicaltrials.gov/study/NCT04094844 International Registered Report Identifier (IRRID): RR2-10.2196/19288 
SN  - 2561-326X
UR  - https://formative.jmir.org/2023/1/e49806
UR  - https://doi.org/10.2196/49806
UR  - http://www.ncbi.nlm.nih.gov/pubmed/37651172
DO  - 10.2196/49806
ID  - info:doi/10.2196/49806
ER  -