TY  - JOUR
AU  - Karni, Liran
AU  - Jusufi, Ilir
AU  - Nyholm, Dag
AU  - Klein, Gunnar Oskar
AU  - Memedi, Mevludin
PY  - 2022
DA  - 2022/6/9
TI  - Toward Improved Treatment and Empowerment of Individuals With Parkinson Disease: Design and Evaluation of an Internet of Things System
JO  - JMIR Form Res
SP  - e31485
VL  - 6
IS  - 6
KW  - Internet of Things
KW  - wearable technology
KW  - Parkinson disease
KW  - patient empowerment
KW  - objective measures
KW  - self-assessment
KW  - self-management
KW  - web interface
AB  - Background: Parkinson disease (PD) is a chronic degenerative disorder that causes progressive neurological deterioration with profound effects on the affected individual’s quality of life. Therefore, there is an urgent need to improve patient empowerment and clinical decision support in PD care. Home-based disease monitoring is an emerging information technology with the potential to transform the care of patients with chronic illnesses. Its acceptance and role in PD care need to be elucidated both among patients and caregivers. Objective: Our main objective was to develop a novel home-based monitoring system (named EMPARK) with patient and clinician interface to improve patient empowerment and clinical care in PD. Methods: We used elements of design science research and user-centered design for requirement elicitation and subsequent information and communications technology (ICT) development. Functionalities of the interfaces were the subject of user-centric multistep evaluation complemented by semantic analysis of the recorded end-user reactions. The ICT structure of EMPARK was evaluated using the ICT for patient empowerment model. Results: Software and hardware system architecture for the collection and calculation of relevant parameters of disease management via home monitoring were established. Here, we describe the patient interface and the functional characteristics and evaluation of a novel clinician interface. In accordance with our previous findings with regard to the patient interface, our current results indicate an overall high utility and user acceptance of the clinician interface. Special characteristics of EMPARK in key areas of interest emerged from end-user evaluations, with clear potential for future system development and deployment in daily clinical practice. Evaluation through the principles of ICT for patient empowerment model, along with prior findings from patient interface evaluation, suggests that EMPARK has the potential to empower patients with PD. Conclusions: The EMPARK system is a novel home monitoring system for providing patients with PD and the care team with feedback on longitudinal disease activities. User-centric development and evaluation of the system indicated high user acceptance and usability. The EMPARK infrastructure would empower patients and could be used for future applications in daily care and research. 
SN  - 2561-326X
UR  - https://formative.jmir.org/2022/6/e31485
UR  - https://doi.org/10.2196/31485
UR  - http://www.ncbi.nlm.nih.gov/pubmed/35679097
DO  - 10.2196/31485
ID  - info:doi/10.2196/31485
ER  -