TY  - JOUR
AU  - Benedict, Catherine
AU  - Dauber-Decker, Katherine L
AU  - King, D'Arcy
AU  - Hahn, Alexandria
AU  - Ford, Jennifer S
AU  - Diefenbach, Michael
PY  - 2021
DA  - 2021/1/22
TI  - A Decision Aid Intervention for Family Building After Cancer: Developmental Study on the Initial Steps to Consider When Designing a Web-Based Prototype
JO  - JMIR Form Res
SP  - e20841
VL  - 5
IS  - 1
KW  - patient-centered care
KW  - user-centered design
KW  - decision support techniques
KW  - decision aid
KW  - cancer
KW  - fertility
KW  - internet-based intervention
KW  - web-based intervention
KW  - mobile phone
KW  - psychosocial intervention
AB  - Background: An important aspect of patient-centered care involves ensuring that patient-directed resources are usable, understandable, and responsive to patients’ needs. A user-centered design refers to an empathy-based framework and an iterative design approach for developing a product or solution that is based on an in-depth understanding of users’ needs, values, abilities, and limitations. Objective: This study presents the steps taken to develop a prototype for a patient resource for young women who have completed treatment for gonadotoxic cancer to support their decision making about follow-up fertility care and family building. Methods: User-centered design practices were used to develop Roadmap to Parenthood, a decision aid (DA) website for family building after cancer. A multidisciplinary steering group was assembled and input was provided. Guidelines from the International Patient DA Society and the Ottawa Decision Support Framework were used throughout the development process. In addition, guidelines for developing health DAs with respect to patient diversity and health literacy were also followed. Results: The Roadmap to Parenthood DA website prototype was systematically and iteratively developed. An extensive process of designing and developing solutions from the perspective of the end user was followed. The steps taken included formative work to identify user needs; determining goals, format, and delivery; design processes (eg, personas, storyboards, information architecture, user journey mapping, and wireframing); and content development. Additional design considerations addressed the unique needs of this patient population, including the emotional experiences related to this topic and decision-making context wherein decisions could be considered iteratively while involving a multistep process. Conclusions: The design strategies presented in this study describe important steps in the early phases of developing a user-centered resource, which will enhance the starting point for usability testing and further design modifications. Future research will pilot test the DA and a planning tool, and evaluate improvement in the decisional conflict regarding family building after cancer. Consistent with a patient-centered approach to health care, the strategies described here may be generalized and applied to the development of other patient resources and clinical contexts to optimize usability, empathy, and user engagement. 
SN  - 2561-326X
UR  - http://formative.jmir.org/2021/1/e20841/
UR  - https://doi.org/10.2196/20841
UR  - http://www.ncbi.nlm.nih.gov/pubmed/33480848
DO  - 10.2196/20841
ID  - info:doi/10.2196/20841
ER  -